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I am 22 and have had vulvadynia for two years.
I was on the pill from the age of 16 - 20. I then came off the pill and vulvadynia started. I blame this hormonal change. I also blame recurrent thrush which I suffered with whilst on the pill, but don't seem to get anymore. I now have the mirena coil and no periods. I have no thrush (!) but the pain from vulvadynia is severe.
I have tried taking gabapentin 600mg, 3 times a day for my pain. It helped a lot, I would recommend it. But I wasn't comfortable taking such a high dose of a relatively new drug. I am considering taking amtitriptyline 10mg at night before bed. However you are not allowed to drink alcohol whilst taking this drug which I'm worried is not going to work with my lifestyle.
My pain is mostly a burning and stinging sensation in the vestibule. Additionally, I have a dull aching feeling around my clitoris and pelvic bone and inside of my thighs and down my legs. The pain isn't terrible, I can still walk and sleep etc. It's just the fact that it's constant and unrelenting that I can't stand. It's starting to really effect me emotionally. How upset it's making me is far worse than the pain. I do not enjoy sex - it feels horrible. Because of this my sex drive has become non-existant. It's upsetting because sometimes I get lonely and would like a boyfriend, but don't feel like I could start a relationship in this state.
Once I have a stable job I am going to save up to try acupuncture, as I've read that this has helped some women.
It's been reassuring reading that other women are going through the same thing. I hope one day we'll all get better.

September 23, 2015 - 4:12pm


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