I am so glad I found this site. And like (another person) who had posted here, I am also very very scared that I will not be able to ever have sex in my life. I am an Indian and 26 years old with a normal life so far.
My journey is like this: I got a infection in the vestibule region about 1 year back. the symptoms were only itching redness and some swelling. It was just an irritant and I went to a gyn immediately. I had tried applying cocunut oil for 2 days which dint help me at all. gyn gave me antibiotics and combiflam. in 5 days, the discomfort was gone.
After a month wearing a particularly tight jean triggered pain in my clitoris. this time it was not that bearable discomfort but pain, aching pain. and no visible redness or itching. only mild swelling of clitoris and labia minora and severe pain. sometimes sharp stinging. the doc gave me 2 more doses of antibiotics and yeast medication which dint help.
I have a history of PCOS and the doctor suspected surgery to reduce the size of the clitoris. I dint like this idea and went to another doc this time an endocrinologist. As i had normal periods and other symtoms of PCOS we controlled it was concluded that I it was not hormnal. then new gyn new round of antibiotics and no relief.. then the next doctor decied i should "ignore" the pain in clitoris and i had another problem. my urethral opening is too small. they tried to stuff my urethral opening with uring tubes and forcibly diltaed it from 6mm to 9mm (average femalle adult apparently should have 14mm). this triggered a new pain -in the bladder, urethral opening and entire pelvic floor.recently i had also been diagnosed with coccyxdyinia and i cannot sit due to that for more than 10 mins. life became hell.. i had pain in clitoris, tailbone, urethra and that weird arousal like feeling with pain in rest of my vulval regions. it had been already 10 months now with the clitoris pain and 4 monthss with tailbone pain and now this new pain.. and still not 1 doctor had diagnosed my pain in clitoris. no one mentioned "vulvodynia/clitorodynia".. it made me so angry..
i went into deprression and was sent to a psychatrist. my work suffered and i was crying all the time and took an extended leave. i was prescribed tricyclic anti depressant - i had read this helps for vulvodynia so started to take it -though it was prescribed for depression. over a week i gathered my self up (pain continues, this was just 2 weeks ago). started ultrsound therapy for the tailbone along with pelvic exercises.. i went back to the doc who stuffed me with the catherer and i was told i need to undergo cystoscopy for cystitis. i had read a lot of things on net including Intertitial cystitis and pudendal nerve entrapment besides clitorodynia and vulvodynia. now i was scared i have IC/PNE. right now my tailbone feels better with ultrasound therapy and exercises.. but the clitoris is still so painful mostly when touched. when i am at home i dont wear a panty and then its ok. i still have pain in urethra and vagina - more like a pulling or tension of muscles there. clitoris stings on touch -even panty. i am still not strong enuf to go for the cystoscopy shceduled 2 weeks later. I guess my life is not going to be normal ever again i am so scared..
meanwhile my perios have become irregular and so light that sometimes i just have spotting..
so like Faf i am now wondering if its all hormone related. please tell me what kinda of hormonal therapy u took. i wanto to know how i can retain a hormonal balance. from my hormone assay onlt androstenedione is marginally higher than normal. other all hormones seem ok.. please help me how u managed to get back ur regular periods.. maybe that will help me too -getting regular periods..
(Personal email address removed by EmpowHER moderator.)
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I am so glad I found this site. And like (another person) who had posted here, I am also very very scared that I will not be able to ever have sex in my life. I am an Indian and 26 years old with a normal life so far.
My journey is like this: I got a infection in the vestibule region about 1 year back. the symptoms were only itching redness and some swelling. It was just an irritant and I went to a gyn immediately. I had tried applying cocunut oil for 2 days which dint help me at all. gyn gave me antibiotics and combiflam. in 5 days, the discomfort was gone.
After a month wearing a particularly tight jean triggered pain in my clitoris. this time it was not that bearable discomfort but pain, aching pain. and no visible redness or itching. only mild swelling of clitoris and labia minora and severe pain. sometimes sharp stinging. the doc gave me 2 more doses of antibiotics and yeast medication which dint help.
I have a history of PCOS and the doctor suspected surgery to reduce the size of the clitoris. I dint like this idea and went to another doc this time an endocrinologist. As i had normal periods and other symtoms of PCOS we controlled it was concluded that I it was not hormnal. then new gyn new round of antibiotics and no relief.. then the next doctor decied i should "ignore" the pain in clitoris and i had another problem. my urethral opening is too small. they tried to stuff my urethral opening with uring tubes and forcibly diltaed it from 6mm to 9mm (average femalle adult apparently should have 14mm). this triggered a new pain -in the bladder, urethral opening and entire pelvic floor.recently i had also been diagnosed with coccyxdyinia and i cannot sit due to that for more than 10 mins. life became hell.. i had pain in clitoris, tailbone, urethra and that weird arousal like feeling with pain in rest of my vulval regions. it had been already 10 months now with the clitoris pain and 4 monthss with tailbone pain and now this new pain.. and still not 1 doctor had diagnosed my pain in clitoris. no one mentioned "vulvodynia/clitorodynia".. it made me so angry..
i went into deprression and was sent to a psychatrist. my work suffered and i was crying all the time and took an extended leave. i was prescribed tricyclic anti depressant - i had read this helps for vulvodynia so started to take it -though it was prescribed for depression. over a week i gathered my self up (pain continues, this was just 2 weeks ago). started ultrsound therapy for the tailbone along with pelvic exercises.. i went back to the doc who stuffed me with the catherer and i was told i need to undergo cystoscopy for cystitis. i had read a lot of things on net including Intertitial cystitis and pudendal nerve entrapment besides clitorodynia and vulvodynia. now i was scared i have IC/PNE. right now my tailbone feels better with ultrasound therapy and exercises.. but the clitoris is still so painful mostly when touched. when i am at home i dont wear a panty and then its ok. i still have pain in urethra and vagina - more like a pulling or tension of muscles there. clitoris stings on touch -even panty. i am still not strong enuf to go for the cystoscopy shceduled 2 weeks later. I guess my life is not going to be normal ever again i am so scared..
meanwhile my perios have become irregular and so light that sometimes i just have spotting..
so like Faf i am now wondering if its all hormone related. please tell me what kinda of hormonal therapy u took. i wanto to know how i can retain a hormonal balance. from my hormone assay onlt androstenedione is marginally higher than normal. other all hormones seem ok.. please help me how u managed to get back ur regular periods.. maybe that will help me too -getting regular periods..
(Personal email address removed by EmpowHER moderator.)
April 19, 2009 - 4:17amThis Comment
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