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Jess, so sorry you're having such pain and difficulty with this. You didn't mention what treatment your urologist is recommending for your trigonitis, or what she/he thinks caused it? And may I ask how old you are? There are some differences in menopausal women with this condition.

The trigone is a small, smooth triangular region at the base of the bladder that signals the brain when the bladder needs to be emptied. As the bladder becomes more full, the trigone increases the urgency of the signals to the brain.

In trigonitis, inflammatory lesions form on the trigone region, causing symptoms of urgency, frequency and pain.

Trigonitis is diagnosed much more often in women (usually of childbearing age) than in men. About 40% of women may have some squamous changes in the trigone, where it happens in only 5% of men. It is almost never diagnosed in children.

The diagnoses of trigonitis is confirmed by cystoscopic examination of tissue in the trigone; did your urologist do this test?

While you don't believe you have interstitial cystitis, some of the bladder symptoms for various problems resemble those of trigonitis, and vice versa. Here's a good explainer page on all of them:

http://www.ic-network.com/handbook/basics.html

Have you been prescribed antibiotics?

Here is a doctor's forum from the IC association with a lot of questions and answers you may be interested in. There is one specific inquiry about trigonitis (check the 11th question) that discusses the use of antibiotics for treatment.

http://www.ichelp.org/Default.aspx?tabid=202

There are also a few questions here that address trigonitis:

http://www.ic-network.com/askthemd/feb2001.html

Here are some women in a naturopathic network who are discussing trigonitis:

http://www.pandamedicine.com/rt_education/239-12.html

Take care, and let us know what's going on. In the meantime, anyone else out there who's been diagnosed with trigonitis?

I see your frustration in finding information. There is much information available on IC but not nearly as much on trigonitis. I would like to get you more; are there any other aspects of your diagnosis that might help in this? Have you considered a second opinion?

October 31, 2008 - 8:57am

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