Indeed, from all the comments here, this is a horrible condition, as I was diagnosed with trigonitis in April 2014. After months of painful bladder procedures/bladder medications that didn't work, and severe, excruciating bladder pain as well as urgency and frequency (going 60 times a day to the bathroom being up all night in agonizing pain), I certainly can validate everyone's frustrations here. The disabling pain that wouldn't go away made me absolutely miserable, and wreaked havoc on my job, my marriage, and my life. My husband wasn't quite able to understand why I couldn't be intimate anymore; but I knew that if I was intimate, I would pay for it for weeks. However, I have learned that instead of following the masses and giving in to to the pain, which made it undeniably worse, I chose to be empowered and do something proactive about my situation. When I received the diagnosis, I decided to research the condition to better understand its causes, the treatment options and the ways in which I could help myself. After spending a lot of time doing so, I learned that my condition was likely caused by a back fracture I sustained last year - in essence, the nerves that connect to the lumbar and sacral spine (the areas of trouble) innervate the bladder. The trigone is the area where the nerve endings bundle and populate. This is exactly why I was struggling - nerve misfires from a broken spinal vertebrae. Anyone who has trigonitis, I suggest you have a chiropractor examine your back to see whether this is a root cause of your problem. I also realized that my diet was not making the situation any better. For those that have trigonitis or any other type of bladder condition, your food choices often dictate whether you will have a good or bad day. I soon became educated on which foods to avoid, namely coffee, chocolate, spices, citrus fruits, cranberry juice, citric acid, vinegar based salad dressings, and a number of other common bladder offenders. I recommend you go to google and search the "IC Diet," which can help you to pinpoint problem foods. A naturopathic doctor who I was seeing ran a blood test as well, to see whether I had food allergies that were contributing to the inflammation in the bladder. Lo and behold, I have a severe allergy to chicken, eggs and dairy products, things I ate regularly before all this started. The blood test examines foods that lead to inflammatory responses in the body - I highly recommend you check this out for yourselves and see whether you may have a similar issue. I also stumbled upon a pelvic floor physical therapist, who found that my pelvic floor was also, due to the back fracture, not functioning correctly, which led to a lot of the pain and agony in the pelvis and bladder. Trust me, there is no quick fix for this problem. But what I do know is that PT, a change in diet, and a simple blood test got to the root causes of my problem. I had gotten to the point where it was either suicide or take matters into my own hands and learn how I could get better. I fought hard and have found some relief. While it is not a perfect science, I recommend for all of you to stop focusing on the negative, which is hard as I know, and start looking at things to help yourself. If anyone has questions, please post and I will answer them. I am no expert, but I do have some helpful suggestions.
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Indeed, from all the comments here, this is a horrible condition, as I was diagnosed with trigonitis in April 2014. After months of painful bladder procedures/bladder medications that didn't work, and severe, excruciating bladder pain as well as urgency and frequency (going 60 times a day to the bathroom being up all night in agonizing pain), I certainly can validate everyone's frustrations here. The disabling pain that wouldn't go away made me absolutely miserable, and wreaked havoc on my job, my marriage, and my life. My husband wasn't quite able to understand why I couldn't be intimate anymore; but I knew that if I was intimate, I would pay for it for weeks. However, I have learned that instead of following the masses and giving in to to the pain, which made it undeniably worse, I chose to be empowered and do something proactive about my situation. When I received the diagnosis, I decided to research the condition to better understand its causes, the treatment options and the ways in which I could help myself. After spending a lot of time doing so, I learned that my condition was likely caused by a back fracture I sustained last year - in essence, the nerves that connect to the lumbar and sacral spine (the areas of trouble) innervate the bladder. The trigone is the area where the nerve endings bundle and populate. This is exactly why I was struggling - nerve misfires from a broken spinal vertebrae. Anyone who has trigonitis, I suggest you have a chiropractor examine your back to see whether this is a root cause of your problem. I also realized that my diet was not making the situation any better. For those that have trigonitis or any other type of bladder condition, your food choices often dictate whether you will have a good or bad day. I soon became educated on which foods to avoid, namely coffee, chocolate, spices, citrus fruits, cranberry juice, citric acid, vinegar based salad dressings, and a number of other common bladder offenders. I recommend you go to google and search the "IC Diet," which can help you to pinpoint problem foods. A naturopathic doctor who I was seeing ran a blood test as well, to see whether I had food allergies that were contributing to the inflammation in the bladder. Lo and behold, I have a severe allergy to chicken, eggs and dairy products, things I ate regularly before all this started. The blood test examines foods that lead to inflammatory responses in the body - I highly recommend you check this out for yourselves and see whether you may have a similar issue. I also stumbled upon a pelvic floor physical therapist, who found that my pelvic floor was also, due to the back fracture, not functioning correctly, which led to a lot of the pain and agony in the pelvis and bladder. Trust me, there is no quick fix for this problem. But what I do know is that PT, a change in diet, and a simple blood test got to the root causes of my problem. I had gotten to the point where it was either suicide or take matters into my own hands and learn how I could get better. I fought hard and have found some relief. While it is not a perfect science, I recommend for all of you to stop focusing on the negative, which is hard as I know, and start looking at things to help yourself. If anyone has questions, please post and I will answer them. I am no expert, but I do have some helpful suggestions.
July 31, 2014 - 9:25amThis Comment
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