My heart goes out to all fellow sufferers of this horrible affliction! I was diagnosed in July, 2015 and although I had symptoms on and off for several years, I didn't have my cystoscopy done until then. IC was ruled out at the same time but I do follow the IC diet because anything, and I mean ANYTHING remotely acidic, causes a major flare-up. For example, I avoid most citrus fruits, coffee, tea, alcohol, some meats and anything with high acidity. Although I have some discomfort daily, this diet helps keep the major flare-ups at bay. I am only 35 and this is by far one of the most depressing and debilitating things I have gone through in my life! It is so hard to live day to day, not knowing how you will feel and not having the simple luxury of eating and drinking like a normal person! Tell me how a normal functioning person is supposed to get through the workday without a cup of coffee? That is the hardest for me. Or not being able to enjoy a glass of wine to relax at night or on a weekend. I've tried it all: antibiotics, dilation on several occasions and food avoidance; however, there may be HOPE here and something to look forward to with these following sentences. After much research, my husband and I stumbled upon an article online about a study done in Texas on a group of women with Trigonitis. It is a procedure called FULGURATION. http://www.sciencedirect.com/science/article/pii/S1879522615004212
I was desperate to have anything done for a cure, so I presented this study to my Urologist and he said he was able to do the procedure for me. It was exactly 5 weeks today that I had this done. Since it takes up to 12 weeks to recover, I will be having my follow-up cystoscopy in early April to determine if it worked. Fingers crossed and to all of you who pray, please do! Maybe this is our answer!!! I have had some discomfort during this healing process but no more than usual, with only one flare-up but that was while I was shedding some of the scabbing in the bladder. It is too early to tell at this point if it worked, but I will keep you informed. Good luck to all and God bless!
If anyone needs more information, feel free to email me at [email protected]
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My heart goes out to all fellow sufferers of this horrible affliction! I was diagnosed in July, 2015 and although I had symptoms on and off for several years, I didn't have my cystoscopy done until then. IC was ruled out at the same time but I do follow the IC diet because anything, and I mean ANYTHING remotely acidic, causes a major flare-up. For example, I avoid most citrus fruits, coffee, tea, alcohol, some meats and anything with high acidity. Although I have some discomfort daily, this diet helps keep the major flare-ups at bay. I am only 35 and this is by far one of the most depressing and debilitating things I have gone through in my life! It is so hard to live day to day, not knowing how you will feel and not having the simple luxury of eating and drinking like a normal person! Tell me how a normal functioning person is supposed to get through the workday without a cup of coffee? That is the hardest for me. Or not being able to enjoy a glass of wine to relax at night or on a weekend. I've tried it all: antibiotics, dilation on several occasions and food avoidance; however, there may be HOPE here and something to look forward to with these following sentences. After much research, my husband and I stumbled upon an article online about a study done in Texas on a group of women with Trigonitis. It is a procedure called FULGURATION. http://www.sciencedirect.com/science/article/pii/S1879522615004212
February 8, 2016 - 6:56pmI was desperate to have anything done for a cure, so I presented this study to my Urologist and he said he was able to do the procedure for me. It was exactly 5 weeks today that I had this done. Since it takes up to 12 weeks to recover, I will be having my follow-up cystoscopy in early April to determine if it worked. Fingers crossed and to all of you who pray, please do! Maybe this is our answer!!! I have had some discomfort during this healing process but no more than usual, with only one flare-up but that was while I was shedding some of the scabbing in the bladder. It is too early to tell at this point if it worked, but I will keep you informed. Good luck to all and God bless!
If anyone needs more information, feel free to email me at [email protected]
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