Hi I have been been suffering with the same condition for 16 years now, seen numerous specialist.
I have had Botox injected into the vaginal area targeting certain tight pelvic floor muscle areas and yes it did work but only temporarily as Botox is not permanent.
I have flared up again and it just feels like I have chronic cystitis very debilitating.
Put a big stress on everyday living trying to work and stay strong with your family and partner.
I also get the bladder spasms that causes my trigonitis to flare when that happens and I have no control of that.
The only thing I find that gives me some relief is half a tablet of Bactrium at night which is an antibiotic, a low dose anti inflammatory tablet Celebrex helps and get vaginal pessaries of Valium made by a compound pharmacy, place one in the vagina at night, take low dose of gabapentin which help with neuralgic pain.
Sometimes your pelvic floor muscles are also making the problem worse, check you don't have hypertonic pelvic floor, that means very tight muscles., which I have as well.
I have tried everything and I am still suffering. As I said I have been ok for 18 months after the Botox but sex flares it up immediately.
I do constantly use the Valium and Bactria when it get really bad.
I also find that taking prelief which a tablet that neutralises the acidity in your bladder helps before any meal.
Definitely take them, if you can't get them take bicarbonate of soda.
I'm seeing the specialist again next week, another cystoscopy. Having a urethral dilation helps temporarily.
Wish you all the best. Very debilitating disease to have, wish there was a cure.
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Hi I have been been suffering with the same condition for 16 years now, seen numerous specialist.
March 3, 2017 - 3:57pmI have had Botox injected into the vaginal area targeting certain tight pelvic floor muscle areas and yes it did work but only temporarily as Botox is not permanent.
I have flared up again and it just feels like I have chronic cystitis very debilitating.
Put a big stress on everyday living trying to work and stay strong with your family and partner.
I also get the bladder spasms that causes my trigonitis to flare when that happens and I have no control of that.
The only thing I find that gives me some relief is half a tablet of Bactrium at night which is an antibiotic, a low dose anti inflammatory tablet Celebrex helps and get vaginal pessaries of Valium made by a compound pharmacy, place one in the vagina at night, take low dose of gabapentin which help with neuralgic pain.
Sometimes your pelvic floor muscles are also making the problem worse, check you don't have hypertonic pelvic floor, that means very tight muscles., which I have as well.
I have tried everything and I am still suffering. As I said I have been ok for 18 months after the Botox but sex flares it up immediately.
I do constantly use the Valium and Bactria when it get really bad.
I also find that taking prelief which a tablet that neutralises the acidity in your bladder helps before any meal.
Definitely take them, if you can't get them take bicarbonate of soda.
I'm seeing the specialist again next week, another cystoscopy. Having a urethral dilation helps temporarily.
Wish you all the best. Very debilitating disease to have, wish there was a cure.
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