My husband has the disease as well, he was told at a young age (he 55yrs old now) that it only occured in first born males. Both his mother and father had the disease as well as other unknown congenital deformities. He was told in his 20's they should never had children. His mother went on and had five more children. None except him had this horrific condition. My husband was foster out at the age of three, and he remembers wearing leg braces, his sister the next in line and the third youngest were put into a home, before the age of five (too hard basket), for the fostering agency at the time. He has a son (34yrs old) whom he hasn't seen since he was 6yr old (it must me heartbreaking for both of them), and his son has the disease as well and that's what made my husband think that it was the First Born Male Syndrome. He now knows it is common in both male and females. He himself was the byproduct of two people that should never ever have had children, in his own words in those days 55yr ago it was all ignorance and too hard for the medical profession, but now thanks to modern technology he is actually able to find out and more than willing to share his experience with others including medical (doctors, specialists etc). He has a wealth of knowledge about every single symptom. He is disabled but still carries on day in day out occupying his mind and his body doing things he likes to do, it is slowing him down but he still forging ahead. He has a extremeley strong mind and personallity. With all of this going on he still has the time and strength to look after me. He is my carer, husband and best friend and wish I could do more to help him. His motto is (Never say die) figuratively speaking, onward and upwards. He has such a brilliant mind he looks upto Stephen Hawkins (MND) and he will not let this beat him. Kind Regards Rosslyn
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My husband has the disease as well, he was told at a young age (he 55yrs old now) that it only occured in first born males. Both his mother and father had the disease as well as other unknown congenital deformities. He was told in his 20's they should never had children. His mother went on and had five more children. None except him had this horrific condition. My husband was foster out at the age of three, and he remembers wearing leg braces, his sister the next in line and the third youngest were put into a home, before the age of five (too hard basket), for the fostering agency at the time. He has a son (34yrs old) whom he hasn't seen since he was 6yr old (it must me heartbreaking for both of them), and his son has the disease as well and that's what made my husband think that it was the First Born Male Syndrome. He now knows it is common in both male and females. He himself was the byproduct of two people that should never ever have had children, in his own words in those days 55yr ago it was all ignorance and too hard for the medical profession, but now thanks to modern technology he is actually able to find out and more than willing to share his experience with others including medical (doctors, specialists etc). He has a wealth of knowledge about every single symptom. He is disabled but still carries on day in day out occupying his mind and his body doing things he likes to do, it is slowing him down but he still forging ahead. He has a extremeley strong mind and personallity. With all of this going on he still has the time and strength to look after me. He is my carer, husband and best friend and wish I could do more to help him. His motto is (Never say die) figuratively speaking, onward and upwards. He has such a brilliant mind he looks upto Stephen Hawkins (MND) and he will not let this beat him. Kind Regards Rosslyn
August 7, 2014 - 5:33pmThis Comment
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