Hi, I'm 21 years old and have been diagnosed with CMT. They think it is type two. I've shown symptoms at a very young age (4-5-6 yoa) for what has shown to be a mature disease. Reconstructive surgeries have been done to both of my feet and one of my knees. It was just operated on a month ago due to the fact that I chose not to take in the inevedable sitting down and have blown it out hundreds of times beyond proper function in attempts to try and keep active (sports, biking, walking). When I was younger I always knew I'd be the one to figure out the cause of all this struggle so many people with; specifically CMT, and other types of nurapathy (don't know if I spelt that right:) endure. The pain came so early that I didn't have the option of taking painkillers (thank God) so, now I don't even feel it any more except when I dislocate joints due to the fact that the muscles holding them in place haven't even had a chance to develope proper never mind degenerate (though they do of course). I dropped out of high school due to severe depression and lack of motivation and now I'm about to have a daughter that has a fifty percent chance of entering the same life struggle I did. If there's any justice in the universe I'm sure she will be just fine though. I've tried so many different things and I've found that daily stretching (AS MUCH AS YOU CAN) can't stress that enough. Cut hydrogonated oils (espesially canola oil, It's in everything and it's the worst google it you don't trust me) and supply yourself with plenty of vitamins. Vitamin E I've found works wonders and NON-hydroginated seseme oil rubbbed on after a shower helps mobility more than you can imagine (obviously not the smelly kind *ick* and it sinks in well enough to not stay oily, It helps cleanse muscles and skin). I'm no hibby dibby hippy tree hugger and I don't condone senseless therapy but these things are signifigantly improving my overall health and abilities. Canola oil causes long term effects that the Canadian government openly paid the FDA to overlook and every single one of the symptoms it causes are identical to muscular nuropathy. Why is there no wonder drug or cure as of yet? Because there will never be one. Canola oil is a multi billion dollar industry and if they told you that it causes people's myelin shealth to continually and slowly deteriorate then it would have to be pulled from the shelves or be sold with a warning label attached. They don't even sell it in Europe any more (can you smell bad meat??), due to the fact that it caused MAD COW DISEASE. This isn't a corporate slandering of the hydrogenated oil industry though. I'm just trying to say that if you're going to try and fix the problem figure out how to do it practically without having to take as many extreme measures as possible. Keep active, walk, get a treadmill, stretch and try to keep your nerves healthy. Look up nerve structure and educate yourself on what they are constructed of and all of the major functions affecting them and you'll find that knowing this will help in your journey to a healthy recovery. The effects I've found are not irreversible like a lot of doctors and people who don't live with the problem have grown to initially believe but, it takes a lot of dedication and insight to overcome. Disease is a predilection to certain symptoms and the only way to avoid further problems, which is vital to know in order to recover from it's effects, you would have to find the key influence that is hindering your functionality. In my case I've found a healthy raw vegetable diet and some experimenting with vitamins and supplements has shown to be most effective for myself but, everyone is different I guess and well the similarities in symptoms from one nuropathy to the next may make all the difference in the world. I'm obviously not a doctor but, I've seen thousands and the person who has made the biggest difference so far wasn't any of the PHD holders (God bless them) but, instead it was my own discoveries. Search for answers and eventually all things willing you'll find them.
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Hi, I'm 21 years old and have been diagnosed with CMT. They think it is type two. I've shown symptoms at a very young age (4-5-6 yoa) for what has shown to be a mature disease. Reconstructive surgeries have been done to both of my feet and one of my knees. It was just operated on a month ago due to the fact that I chose not to take in the inevedable sitting down and have blown it out hundreds of times beyond proper function in attempts to try and keep active (sports, biking, walking). When I was younger I always knew I'd be the one to figure out the cause of all this struggle so many people with; specifically CMT, and other types of nurapathy (don't know if I spelt that right:) endure. The pain came so early that I didn't have the option of taking painkillers (thank God) so, now I don't even feel it any more except when I dislocate joints due to the fact that the muscles holding them in place haven't even had a chance to develope proper never mind degenerate (though they do of course). I dropped out of high school due to severe depression and lack of motivation and now I'm about to have a daughter that has a fifty percent chance of entering the same life struggle I did. If there's any justice in the universe I'm sure she will be just fine though. I've tried so many different things and I've found that daily stretching (AS MUCH AS YOU CAN) can't stress that enough. Cut hydrogonated oils (espesially canola oil, It's in everything and it's the worst google it you don't trust me) and supply yourself with plenty of vitamins. Vitamin E I've found works wonders and NON-hydroginated seseme oil rubbbed on after a shower helps mobility more than you can imagine (obviously not the smelly kind *ick* and it sinks in well enough to not stay oily, It helps cleanse muscles and skin). I'm no hibby dibby hippy tree hugger and I don't condone senseless therapy but these things are signifigantly improving my overall health and abilities. Canola oil causes long term effects that the Canadian government openly paid the FDA to overlook and every single one of the symptoms it causes are identical to muscular nuropathy. Why is there no wonder drug or cure as of yet? Because there will never be one. Canola oil is a multi billion dollar industry and if they told you that it causes people's myelin shealth to continually and slowly deteriorate then it would have to be pulled from the shelves or be sold with a warning label attached. They don't even sell it in Europe any more (can you smell bad meat??), due to the fact that it caused MAD COW DISEASE. This isn't a corporate slandering of the hydrogenated oil industry though. I'm just trying to say that if you're going to try and fix the problem figure out how to do it practically without having to take as many extreme measures as possible. Keep active, walk, get a treadmill, stretch and try to keep your nerves healthy. Look up nerve structure and educate yourself on what they are constructed of and all of the major functions affecting them and you'll find that knowing this will help in your journey to a healthy recovery. The effects I've found are not irreversible like a lot of doctors and people who don't live with the problem have grown to initially believe but, it takes a lot of dedication and insight to overcome. Disease is a predilection to certain symptoms and the only way to avoid further problems, which is vital to know in order to recover from it's effects, you would have to find the key influence that is hindering your functionality. In my case I've found a healthy raw vegetable diet and some experimenting with vitamins and supplements has shown to be most effective for myself but, everyone is different I guess and well the similarities in symptoms from one nuropathy to the next may make all the difference in the world. I'm obviously not a doctor but, I've seen thousands and the person who has made the biggest difference so far wasn't any of the PHD holders (God bless them) but, instead it was my own discoveries. Search for answers and eventually all things willing you'll find them.
August 1, 2009 - 10:32amThis Comment
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