Hi everyone. Here is my story.....
I am a 33 y/o male and was diagnosed in August 2008 with CMT by a nerve conduction study. I've had increasing pain on the bottoms of both feet for about 7 or 8 years now and thought it was related to plantar-faciaitus. Even though I am very clumsy, I do not appear to have any motor involvement, just sensory. My neurologist tried me on 20mg of Lyrica, it didn't help and made me very tired. Then we tried 60mg Cymbalta and I've had great results! I'm not 100% pain free, but I can stand up for more than 10 seconds. I dread the days when I forget to take the Cymbalta in the morning.
Alternative therapies I've tried is CoQ10 for a couple months (no difference). I was also sent to PT using a machine called Anodyne. It is an infra-red therapy device and it REALLY helped over successive treatments. I only had about 7 or 8 until I stopped. You can buy Anodyne units for $800 refurbished or on eBay. The pads strap around your feet with velcro or they also have add-ons for legs. Hopefully someone will come up with a cheaper device soon!
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Hi everyone. Here is my story.....
I am a 33 y/o male and was diagnosed in August 2008 with CMT by a nerve conduction study. I've had increasing pain on the bottoms of both feet for about 7 or 8 years now and thought it was related to plantar-faciaitus. Even though I am very clumsy, I do not appear to have any motor involvement, just sensory. My neurologist tried me on 20mg of Lyrica, it didn't help and made me very tired. Then we tried 60mg Cymbalta and I've had great results! I'm not 100% pain free, but I can stand up for more than 10 seconds. I dread the days when I forget to take the Cymbalta in the morning.
Alternative therapies I've tried is CoQ10 for a couple months (no difference). I was also sent to PT using a machine called Anodyne. It is an infra-red therapy device and it REALLY helped over successive treatments. I only had about 7 or 8 until I stopped. You can buy Anodyne units for $800 refurbished or on eBay. The pads strap around your feet with velcro or they also have add-ons for legs. Hopefully someone will come up with a cheaper device soon!
December 2, 2009 - 9:14amThis Comment
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