I'm a lupus patient (with an accompanying set of additional complications and conditions) and had been treated with prednisone early on. However, a friend of mine who was a Pediatrician strongly encouraged me against it, citing how damaging prednisone can be.
You're certainly a fighter and I'm in awe of you. I've never heard of EDS (in my world, it's a software company that my DH used to work for). You're so right about Medicare, or health insurance as a rule, not knowing what to do about treatment for diseases that don't fall within their "norm."
Besides coming here, is there a support group for EDS that you're part of?
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I'm a lupus patient (with an accompanying set of additional complications and conditions) and had been treated with prednisone early on. However, a friend of mine who was a Pediatrician strongly encouraged me against it, citing how damaging prednisone can be.
You're certainly a fighter and I'm in awe of you. I've never heard of EDS (in my world, it's a software company that my DH used to work for). You're so right about Medicare, or health insurance as a rule, not knowing what to do about treatment for diseases that don't fall within their "norm."
Besides coming here, is there a support group for EDS that you're part of?
June 3, 2009 - 7:20pmThis Comment
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