I can so relate on many levels. When I started reacting to the prednisone- the GP sent me to an endo who said, "You can't have cushings and your numbers are wrong for anything other than- you must be eating too much". I gained 14lbs in ONE week- do you know how much I'd have to eat for that to happen? When I was 89 lbs over my weight- at 3 months after the conversation- I got sent back again and he said, and I quote, "I can't do anything for you, until you stop eating." I went anorexic for almost a month. I didn't lose a pound. I had a nutritionist come to my house and "Verify" the foods in my home- yogurt was the most fattening. Mostly it was fruit and veggies. The doctor was WRONG for talking to me like an idiot.
Flash forward- THREE years later, I am down a wopping 30 lbs from the last Endo visit. I get sent again because suddenly I gain 3 lbs a day for a week. Well, THIS endo says, "the numbers are telling me nothing". How about LOOKING AT THE PATIENT? Just weird. I brought photos of me at 110, and then she looked at me like I was from Mars saying "you were much younger here" when No, I wasn't, it was just before prednisone just 3 years prior.
Okay- I gave up on their "help" and went to a GP the insurance company recommended. Within an hour she had a blood test back that read I had an autoimmune disease, the antibodies for said illness were off the charts, and it's a wonder no one did anything about it for all this time- when years of joint damage could have been prevented. She now has me on Synthroid, and although the weight seems to be an issue- at least I know she is treating me- unlike the two Endo's who were alleged experts in the field.
And yes, I agree, the Pharma community makes almost NO money from us so there is no push to help. Stem cell research would be a great big help. No money there, for us. There's a standing joke in Pharma that if they cured cancer they could go bankrupt. So, the "treat" cancer. Nice. (Read Melody Petersen's Our Daily Meds for a great book on this.)
I hear your frustration, and I hear it LOUDLY. I hear it because I feel it and I know what its like to bang your head on a wall hoping someone will hear you. Listening is a lost art- and with alleged "managed" care- we have lost the ears of doctors in lieu of billing practices. If you ever want to email me off board, [email protected]
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I can so relate on many levels. When I started reacting to the prednisone- the GP sent me to an endo who said, "You can't have cushings and your numbers are wrong for anything other than- you must be eating too much". I gained 14lbs in ONE week- do you know how much I'd have to eat for that to happen? When I was 89 lbs over my weight- at 3 months after the conversation- I got sent back again and he said, and I quote, "I can't do anything for you, until you stop eating." I went anorexic for almost a month. I didn't lose a pound. I had a nutritionist come to my house and "Verify" the foods in my home- yogurt was the most fattening. Mostly it was fruit and veggies. The doctor was WRONG for talking to me like an idiot.
Flash forward- THREE years later, I am down a wopping 30 lbs from the last Endo visit. I get sent again because suddenly I gain 3 lbs a day for a week. Well, THIS endo says, "the numbers are telling me nothing". How about LOOKING AT THE PATIENT? Just weird. I brought photos of me at 110, and then she looked at me like I was from Mars saying "you were much younger here" when No, I wasn't, it was just before prednisone just 3 years prior.
Okay- I gave up on their "help" and went to a GP the insurance company recommended. Within an hour she had a blood test back that read I had an autoimmune disease, the antibodies for said illness were off the charts, and it's a wonder no one did anything about it for all this time- when years of joint damage could have been prevented. She now has me on Synthroid, and although the weight seems to be an issue- at least I know she is treating me- unlike the two Endo's who were alleged experts in the field.
And yes, I agree, the Pharma community makes almost NO money from us so there is no push to help. Stem cell research would be a great big help. No money there, for us. There's a standing joke in Pharma that if they cured cancer they could go bankrupt. So, the "treat" cancer. Nice. (Read Melody Petersen's Our Daily Meds for a great book on this.)
I hear your frustration, and I hear it LOUDLY. I hear it because I feel it and I know what its like to bang your head on a wall hoping someone will hear you. Listening is a lost art- and with alleged "managed" care- we have lost the ears of doctors in lieu of billing practices. If you ever want to email me off board, [email protected]
June 6, 2009 - 9:40amThis Comment
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