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(reply to lindaloo)

It has been difficult finding information...but I may have some leads for you!

Since you said endocrinologists aren't "interested" in your condition, you may want to start with your symptom of hair loss, and see an M.D. who specializes in Dermatology.

The places I have found most helpful are usually Medical Centers/Hospitals connected with a University, as they have "teaching" as a primary focus, and are more interested in helping you find resources. If any of these doctors are too far away, you can call their office (the Medical Center) and ask who they recommend in your area.

Here is a starting place for Dermatologists:
- http://www.uchospitals.edu/adult/FindPhysicianHandler.do

Here is the starting place for Endocrinologists:
- http://www.uchospitals.edu/adult/FindPhysicianHandler.do

You can also just call the main UC Hospital number: HealthLink toll-free at 1-888-UCH-0200.

Good luck, and please let us know what you find! Is your doctor's nurse able to provide any references for you?

December 5, 2010 - 9:32pm

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