I know exactly how you feel, I have had to drop out of Uni for the year to try and give myself time to rest and trial different medications.
I was told I have "Painful Bladder Syndrome" a few days ago, and I've been given a really strong anti-depressant to help block the nerves from sending pain signals to my brain, and a patch that I have to wear all the time that releases medicine into my blood stream to help with my bladder muscles relaxing.
Well I know it's only been a day since starting the medications, but I am not feeling any different, and I have also had a sugar, preservative, acidic free diet for the last few weeks, which isn't helping either.
People just don't realise how much it affects us, if I am ever actually feeling pain free, I am constantly worried about when it's going to come back. Because I know it will. I've learnt not to get excited when I'm pain-free, because it just leads to disappointment sooner than later.
Try this website:
http://www.ic-network.com/forum/forum.php
there ae lots of discussion forums between people with the same/similar problems. I know it won't fix anything, but sometimes it's nice to just know you aren't alone.
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I know exactly how you feel, I have had to drop out of Uni for the year to try and give myself time to rest and trial different medications.
I was told I have "Painful Bladder Syndrome" a few days ago, and I've been given a really strong anti-depressant to help block the nerves from sending pain signals to my brain, and a patch that I have to wear all the time that releases medicine into my blood stream to help with my bladder muscles relaxing.
Well I know it's only been a day since starting the medications, but I am not feeling any different, and I have also had a sugar, preservative, acidic free diet for the last few weeks, which isn't helping either.
People just don't realise how much it affects us, if I am ever actually feeling pain free, I am constantly worried about when it's going to come back. Because I know it will. I've learnt not to get excited when I'm pain-free, because it just leads to disappointment sooner than later.
Try this website:
http://www.ic-network.com/forum/forum.php
there ae lots of discussion forums between people with the same/similar problems. I know it won't fix anything, but sometimes it's nice to just know you aren't alone.
Make an appointment to see a Urologist ASAP.
September 12, 2012 - 1:18amThis Comment
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