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I'm a 45 year old guy, not only women get it :-0) total thyroidectomy

I was diagnosed whist staying in France in October aged 44 and was told that it needed to be removed immediately by that first week in November due to it increasing in size approx. and they wanted to book me in. No money said I needed to be treated in my own country, so I went back to England to see my GP (1 week wait for an appointment) and despite no-one is supposed to wait longer than 3 months after being diagnosed with it, I had to wait yet another 2 months just to see an eyes, ears and nose specialist/ surgeon. He then put me on another 4 months waiting list and said "not to worry because he had known two people wait 11months and still survive" What a thoughtful chap. LOL. but if i was willing to pay him him top price he could do it privately in two months.

I borrowed some money and went back to stay with some family in France and simply put my name on the normal waitng list the same as any other French citizen. Everything was done and dusted in 5 weeks ( I had to pay the full fee but it was only a little over half what the UK surgeon wanted privately.

Surgery was suposed to take 30 minutes and ended up as 4 hours due to it increasing so much in size and spreading. Thankyou for that English NHS system.
6 months before this happened to me, a friend of friend died in Thailand of cancer because she couldn't afford treatment. I told it as a terrible story and said how forutnate I was to be a UK citizen I praised the UK and it's free medical treatment especially for cancer. LOL but when I needed it....haha..

Anyway I read two books and throughly enjoyed the peace and quiet after surgery in france. The iodine ablation when you are quarantined in a lead lined room for a few days ( depends on dosage and I went back to the UK for that ...only had to wait another 10 months:-p) ) was different but again very peaceful. It is amazing how it works though. I didn't get the burning sensation from when it found the remants until the next day. It attacks only thyroid remants or where it has spread too.( it's all very clever).

The only worry about the whole thing was I didn't know ( I wasn't given a biopsy as apparently it was clear it was cancer) was if it was papillary cancer or Anaplastic carcinoma (due to the speed of the growth) which meant I would die for sure very very much more quickly. Anyway all good in the end it was papillary.

BTW After the Operation and hormone replacement I lost my memory for quite a while. I had a 1-2 second memory on some things too.

EG.
The password to turn on My computer (which was my name) would take 5 attempts to get in each time. I would look at on on paper, start to type and then blank and repeat 4 more times on average.

I now understand how difficult it must be to be a women with regular hormone inbalances. ( some men clearly get them too) From a man never having a doubt on anything I started to doubt and question everything and I suppose I really couldn't trust my own judgement sometimes if it meant using memories. Terrible place to be but enlightening in a way of only leaving the moment. I also found out what it was like to have every emotion firing at the same time. Also I had no idea what a controlled person i had been all my life. You know when your male hormones all fire at once, you can be one scary, powerful creature. I had to lock myself away in case someone made me angry, I have never lost my temper before so the outcome may have been very scary indeed) Fortunately I work from home.
For a manly man ( as i consider myself but a gentle) I would stand in a cue in shop for example and suddenly have an uncontrollable urge to burst in to tears ( it would last max. 5 seconds then disappear) weird eh? I also had the opposite emotional moments with rage and there is no information like this at all that this may happen when you take levothtyrox.

Anyway recently I self re-adjusted my dosage to fit how I felt and reduced it another 25% down to 100mg ( they put me on 150mg then 125 then 200 before, boy that was a roller coaster of emotions).

It took about 3-5 weeks for the change to occur.

20months later and I am back to normal. Phew.....

It was still good to experience all those new emotions at all different times but good to have a phsychological balance that i am more familiar with and more importantly my memory is back. I can now remember all passwords, (I use about 10 for different things) and my recall is back, as in, I can now remember what happened the day or night before. I have to admit it was fun to for a while though.

I thought it was about time I shared this info. as it may help someone feel that they haven't lost their mind. It was the result of surgery and hormones and there is no shared information that this can happen.

I can almost guarantee that many many of the people in prison are there due to a flurry of emotions in the wrong place at the wrong time due their having an hormone imbalance ( poor people and so unfair when a simple pill may have prevented it).

100% YOU ARE GOING TO DIE So live you life to the full and don't let it just pass you by. Ultimately it is really is up to you. I spend my life in 4-5 different countries a year now and do whatever I want to do, but have always tried to do after discovering before ( and before cancer) that I was I was trying to live my life through someone else's thinking that I was doing all the giving ( what nonsense).

Have a good life while you have it.

All the best,

David

October 9, 2010 - 8:45am

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