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Anonymous (reply to Kachemak Lou)

I seem to being going down the same path as you are. I was diagnosed with papillary thyroid cancer and Nov 30 had my entire thyroid removed along with eight lymph nodes with two of them coming back positive. My doc also extended into the muscle to retrieve more cancer cells. I am worried that cancer has gone somewhere else in my body and they just haven't found it yet. I take my radioactive iodine pill on Dec 30 and so I am already on the low iodine diet for it. I am also celiac and was also diagnosed with Hashimotos Disease when they found my nodules. Too much going on at once to digest it all. I am worried they might tell me I am now stage four. I have gone from two to three and after my scan, who knows? I am not trying to borrow trouble, I just keep hearing my endo doc say that she believes the cancer has been there a while. Everyone needs to be there OWN ADVOCATE for their own BODY! I had all the symptoms but also going through menopause and blamed my weight gain, my dry skin, my fatigue, and memory problems all on menopause. When in fact, it was HAshimotos. In finding that earlier, they may have found my cancer earlier. I know, woulda, shoulda, coulda, but I just want to let everyone know to listen to your bodies. Pay attention to symptoms. Blood tests aren't always the answer. Go further if you need to. If your doctor, doesn't think it is necessary, ask him if he is paying the bill or you.

Have you had your RAI treatment yet? How was it? Successful in zapping everything? I too, am afraid something might not get zapped. I hate that I am the one responsible for making sure I eat foods with low iodine in them. I have read several different low iodine diets and information that contradicts what each other says. Rice? Yes or no? With me being celiac, I can have rice but no pasta. On this diet, I can't have rice or rice flour, No baking any Christmas goodies this year.
I am interested in how you felt during the treatment days in isolation.
I have been told I will feel like I had the flu. How did you react?
And how are you doing know? Are you clear of cancer? I sure hope so. Prayers coming your way.

Cindy in Williamsburg VA

December 17, 2010 - 11:54am

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