Thank you so much for sharing your story. I can completely relate to everything you said and what a relief to know I wasn't the only one to ever feel that way. The countless visits to the doctors and specialists getting nowhere and feeling like no-one understands and never seeing an end to this horrible feeling was a very frustrating and upsetting time. After 2 years of suffering I was finally diagnosed at age 28. The specialist at the time said there was no known reason or cure, sometimes it can last 2 weeks, 2 years, 10 years etc. the only thing that worked for me was a low dosage of Amitriptyline. After 5 years on it I started to lower the dosage further and slowly came off them (my husband and I wanted to try for a baby). After a few attempts of coming off then it finally went. This was 3 years ago but still to this day I get so paranoid that it will come back again, any little twinge or stinging sensation more or less sends me into a panic attack. I too completely lost my libido and it has never returned. Luckily I have a very understanding husband but we are now trying for baby number 2 and it's such a shame I can't enjoy the trying but! There needs to be something that makes people more aware of this condition including doctors. So pleased I found this site. Wishing everyone well.
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Thank you so much for sharing your story. I can completely relate to everything you said and what a relief to know I wasn't the only one to ever feel that way. The countless visits to the doctors and specialists getting nowhere and feeling like no-one understands and never seeing an end to this horrible feeling was a very frustrating and upsetting time. After 2 years of suffering I was finally diagnosed at age 28. The specialist at the time said there was no known reason or cure, sometimes it can last 2 weeks, 2 years, 10 years etc. the only thing that worked for me was a low dosage of Amitriptyline. After 5 years on it I started to lower the dosage further and slowly came off them (my husband and I wanted to try for a baby). After a few attempts of coming off then it finally went. This was 3 years ago but still to this day I get so paranoid that it will come back again, any little twinge or stinging sensation more or less sends me into a panic attack. I too completely lost my libido and it has never returned. Luckily I have a very understanding husband but we are now trying for baby number 2 and it's such a shame I can't enjoy the trying but! There needs to be something that makes people more aware of this condition including doctors. So pleased I found this site. Wishing everyone well.
September 15, 2015 - 2:23pmThis Comment
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