Hi. Have you tried amitriptyline? That is the only thing that worked for me. Once you have had constant pain like that your brain apparently gets used to it so these tablets trick your brain. I was on them for around 5 years but have been off them for 3 years now. This condition is horrendous and takes over your life effecting everything. Even though I am ok now I get so paranoid it would come back again. Reading other people's experiences does help though. I really hope you find a treatment that works for you.