So I am 25 and I've had chronic pelvic pain for 5 years. No sex, no riding bikes, no tight pants, no just being normal! It began with recurrent bladder infections, I figured they were due to my body's sensitivity to my new boyfriend and us having sex. Eventually the infections went away but the pain remained. I was diagnosed with IC and treated for that for a couple years (no improvement) and then later diagnosed with vestibulodynia. I've tried EVERY treatment. Various medications (gabapentin, elavil, elmiron), creams (lidocaine, gabapentin), diet (IC and vulodynia), pudendal nerve blocks (very expensive), acupuncture, herbs, pellvic floor therapy, biofeedback regular therapy, allergy medication. I received numerous touch (visual) tests, std tests, other blood tests, a MRI, a cystoscopy, ultrasounds, etc...
Today I sat in my Doctor's, one of the best OBGYNs (in the field of vestibulodynia, I found her on the internet and sought her out) and she gave me NOTHING. Not you should try this or that....nothing. Ive been seeing her for 3 years; every 7 months she tells me to try this or that (pills, meditation, cream, injections..) or see this or that person, but today nothing. I left her office so hopeless that I could barely make it to my car to break down and cry.
I dont know where to go from here. I stillhave the same very supportive understanding boyfriend but I am so lost. I almost feel like I need to break up with him becasue of the pressure of not only not being able to have sex with him but also being so turned off I have a hard time being sexual at all. Everytime I'm mildly turned on the pain rises to the point I have to stop. I feel like it s such a sick mind game. It's hard to be happy but I try so hard to seem happy because I feel its the least I can do for him being so supportive.
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So I am 25 and I've had chronic pelvic pain for 5 years. No sex, no riding bikes, no tight pants, no just being normal! It began with recurrent bladder infections, I figured they were due to my body's sensitivity to my new boyfriend and us having sex. Eventually the infections went away but the pain remained. I was diagnosed with IC and treated for that for a couple years (no improvement) and then later diagnosed with vestibulodynia. I've tried EVERY treatment. Various medications (gabapentin, elavil, elmiron), creams (lidocaine, gabapentin), diet (IC and vulodynia), pudendal nerve blocks (very expensive), acupuncture, herbs, pellvic floor therapy, biofeedback regular therapy, allergy medication. I received numerous touch (visual) tests, std tests, other blood tests, a MRI, a cystoscopy, ultrasounds, etc...
Today I sat in my Doctor's, one of the best OBGYNs (in the field of vestibulodynia, I found her on the internet and sought her out) and she gave me NOTHING. Not you should try this or that....nothing. Ive been seeing her for 3 years; every 7 months she tells me to try this or that (pills, meditation, cream, injections..) or see this or that person, but today nothing. I left her office so hopeless that I could barely make it to my car to break down and cry.
I dont know where to go from here. I stillhave the same very supportive understanding boyfriend but I am so lost. I almost feel like I need to break up with him becasue of the pressure of not only not being able to have sex with him but also being so turned off I have a hard time being sexual at all. Everytime I'm mildly turned on the pain rises to the point I have to stop. I feel like it s such a sick mind game. It's hard to be happy but I try so hard to seem happy because I feel its the least I can do for him being so supportive.
Does anyone having ANY advice?
June 26, 2009 - 12:51amThis Comment
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