Dr (name removed) prescribed all topical hormones. Once a day was - 3 drops around outside, vestibule and inside of the vagina -estradiol 0.02%, Estrogel 0.06% on my arm, Testim (testosterone) 1% on my leg, and one progesterone pill a week. I am not doing this. I am 60 and am in menopause and he is trying to make me a 25 year old again. I just want the pain gone. So I use the topical hormone on the vagina and vestibule only. I don't think this will work. I am okay now but I usually am okay in cold weather. My problem happens in the summer when it’s hot and when I am in a tense situation. I don't have horrible pain while having sex. My pain usually comes AFTER sex when it becomes inflamed and flares up because of sex. I do mental exercises to relax the muscles of the vagina and that helps but sometimes it just flares up so badly (mostly in the summer and after sex) that I have to use the lidocaine.
Dr (name removed) said I could have a vestibulectomy but a picture of the procedure right after it was done looked pretty scary and I worry it won't work and I'll just be worse off than I was before. It also costs a lot and he probably is not covered by insurance (don't know yet. I paid him in full first and I sent in a reimbursement).
Dr (name removed) told me that there is a natural mistake in the female genitalia. On the outside we have the labia majora, then the labia minora and then next to that, right before the entrance to the vagina, is a circular strip of URETHRAL tissue where the urethra is. This is the tissue you find inside a man's penis. This tissue should be inside of a human, not outside. This contains lubricant glands for sex. These glands become inflamed and there is our problem. No cure, no antibiotic. From this doctor the only treatments are hormones, relaxation or vestibulectomy. Absolutely NO IDEA where it comes from. Mine began when I had HPV BURNED off of my vaginal area 21 years ago. They stopped that procedure shortly after I had it. This malady seems to be able to come from anywhere, but nobody knows.
But I am very grateful to Dr (name removed). He gave me a diagnosis after 21 years! He SHOWED me and my husband in a mirror and a photograph the little red, inflamed glands in the urethral tissue. There it was! I was happy my husband saw it so he knew how real this was. Doctors just told me I was nuts for years and years and years.
Not a lot of poeple seem to care about vestibulitis while we are in torture. Is it just so rare that no one cares much about it or are there millions of women quietly suffering out there? I wonder.
Much love to you all.
(Physician name removed by EmpowHER Moderator)
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Dr (name removed) prescribed all topical hormones. Once a day was - 3 drops around outside, vestibule and inside of the vagina -estradiol 0.02%, Estrogel 0.06% on my arm, Testim (testosterone) 1% on my leg, and one progesterone pill a week. I am not doing this. I am 60 and am in menopause and he is trying to make me a 25 year old again. I just want the pain gone. So I use the topical hormone on the vagina and vestibule only. I don't think this will work. I am okay now but I usually am okay in cold weather. My problem happens in the summer when it’s hot and when I am in a tense situation. I don't have horrible pain while having sex. My pain usually comes AFTER sex when it becomes inflamed and flares up because of sex. I do mental exercises to relax the muscles of the vagina and that helps but sometimes it just flares up so badly (mostly in the summer and after sex) that I have to use the lidocaine.
December 27, 2009 - 1:08pmDr (name removed) said I could have a vestibulectomy but a picture of the procedure right after it was done looked pretty scary and I worry it won't work and I'll just be worse off than I was before. It also costs a lot and he probably is not covered by insurance (don't know yet. I paid him in full first and I sent in a reimbursement).
Dr (name removed) told me that there is a natural mistake in the female genitalia. On the outside we have the labia majora, then the labia minora and then next to that, right before the entrance to the vagina, is a circular strip of URETHRAL tissue where the urethra is. This is the tissue you find inside a man's penis. This tissue should be inside of a human, not outside. This contains lubricant glands for sex. These glands become inflamed and there is our problem. No cure, no antibiotic. From this doctor the only treatments are hormones, relaxation or vestibulectomy. Absolutely NO IDEA where it comes from. Mine began when I had HPV BURNED off of my vaginal area 21 years ago. They stopped that procedure shortly after I had it. This malady seems to be able to come from anywhere, but nobody knows.
But I am very grateful to Dr (name removed). He gave me a diagnosis after 21 years! He SHOWED me and my husband in a mirror and a photograph the little red, inflamed glands in the urethral tissue. There it was! I was happy my husband saw it so he knew how real this was. Doctors just told me I was nuts for years and years and years.
Not a lot of poeple seem to care about vestibulitis while we are in torture. Is it just so rare that no one cares much about it or are there millions of women quietly suffering out there? I wonder.
Much love to you all.
(Physician name removed by EmpowHER Moderator)
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