From burning hell!
To Mrs Anonymous......I can't beleive i'm reading that you are taking Naltrexone!!! This is fab news!!
I Suffer and have done for many years with chronic Interstitial Cystits (IC)!! And has and had flares of discomfort and burning down below on and of for many years!!
I constantly feel like i have a terrible case of thrush when on my period cycle and after.
However just until recently my down below parts have been in turmoil!! The pain is horrific!! I feel like acid has been poured over me and at times it can be all around my bits down below or just in one area, but can move up to my bum! However the pain got so bad last night i really took a bad wobbley!! And got myself into a right old mess! When i wee it's agony (burns like hell!)
Anyway i'll get to the point, My fantastic CPN has being doing some reseach on Naltrexsone which has been know to be helpful for IC and have tried before however i was on i think it was 5mg tabs at night and i suffered badly with bad headaches and muscle pains and insomnia. so he took me off it.
So i'm now taking dermovate (kind of helps, kind of not!) used three tubes so far! lol Prednisole 5mg 2 daily (helps) I'm now on Trimethoprim because they also think i have a uti. Diazipam for the tense muscles and bladder pain and paracetomls with tramadol (excellent for pain!!) but as i was saying the pain was so intense last night i really started to think in a bad way! (ending it!) which is awful!! So i started on pregabalin and it's kind of helped. However it's just slightly touching the pain! I still can't walk or sit right. And it causing me to wake up at nights now. My ice packs are my best friends at the moment!! lol
So i really want to give the Nalterxone another go as i have read such fantastic papers on it....so can i ask what amount you are on and how often and at what time of the day are you taking it??
Please reply.
Hugs
Erica (at her wits end)
I'm 31 and have two beautiful boys, that at the moment has a rather crappy usless mum!
Thanks
Comment Reply
From burning hell!
June 25, 2010 - 6:51amTo Mrs Anonymous......I can't beleive i'm reading that you are taking Naltrexone!!! This is fab news!!
I Suffer and have done for many years with chronic Interstitial Cystits (IC)!! And has and had flares of discomfort and burning down below on and of for many years!!
I constantly feel like i have a terrible case of thrush when on my period cycle and after.
However just until recently my down below parts have been in turmoil!! The pain is horrific!! I feel like acid has been poured over me and at times it can be all around my bits down below or just in one area, but can move up to my bum! However the pain got so bad last night i really took a bad wobbley!! And got myself into a right old mess! When i wee it's agony (burns like hell!)
Anyway i'll get to the point, My fantastic CPN has being doing some reseach on Naltrexsone which has been know to be helpful for IC and have tried before however i was on i think it was 5mg tabs at night and i suffered badly with bad headaches and muscle pains and insomnia. so he took me off it.
So i'm now taking dermovate (kind of helps, kind of not!) used three tubes so far! lol Prednisole 5mg 2 daily (helps) I'm now on Trimethoprim because they also think i have a uti. Diazipam for the tense muscles and bladder pain and paracetomls with tramadol (excellent for pain!!) but as i was saying the pain was so intense last night i really started to think in a bad way! (ending it!) which is awful!! So i started on pregabalin and it's kind of helped. However it's just slightly touching the pain! I still can't walk or sit right. And it causing me to wake up at nights now. My ice packs are my best friends at the moment!! lol
So i really want to give the Nalterxone another go as i have read such fantastic papers on it....so can i ask what amount you are on and how often and at what time of the day are you taking it??
Please reply.
Hugs
Erica (at her wits end)
I'm 31 and have two beautiful boys, that at the moment has a rather crappy usless mum!
Thanks
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