I am a 24 year old female with very similar as what is described here in the story. I believe I 'got' vulvodynia or vulvar vestibulitis (as it is commonly referred to by both names, and I have both diagnosis in my med records) at 15 years old. The first time I attempted intercourse it caused me pain which has never fully gone away. My vagina tore on both sides and at the top. Being so young I did not understand what was wrong with me at the time. I thought sex was painful for every female and the blood was normal. When I complained of the pain about age 16-17 I was checked for Intersticial Cystitis (IC) because of family history of that disorder. I'd like to note that I was taking the pill at the time I 'got' vulvodynia. I tested negative for IC of course and no one could find out a problem. My doctor actually removed some of my tissue surgically at age 17 from the area. It was scar tissue from the first time I had attempted intercourse. I also quit taking oral contraceptives at that time. I was relatively normal for less than a year following the surgery and my stopping the pill. At 20 the pain had gotten bad enough that even without insurance or financial resources I went back to the doctor, finally getting a diagnosis. I was perscribed steroid cream. It didn't help. I was prescribed estrogen cream. It did help some. I got an IUD ( Mirena ) put in and I believe it has made me steadily worse. I have tried Lidocaine without much success. I have tried Elavil, which made me so tired and confused I couldn't function, as well as numerous off the chart drugs. I can't have sex anymore. And I have trouble sleeping because at the end of the day I am almost always in too much pain to be comfortable. My doctors also think that my Mirena does not contribute to the problem. I think that they're wrong.
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I am a 24 year old female with very similar as what is described here in the story. I believe I 'got' vulvodynia or vulvar vestibulitis (as it is commonly referred to by both names, and I have both diagnosis in my med records) at 15 years old. The first time I attempted intercourse it caused me pain which has never fully gone away. My vagina tore on both sides and at the top. Being so young I did not understand what was wrong with me at the time. I thought sex was painful for every female and the blood was normal. When I complained of the pain about age 16-17 I was checked for Intersticial Cystitis (IC) because of family history of that disorder. I'd like to note that I was taking the pill at the time I 'got' vulvodynia. I tested negative for IC of course and no one could find out a problem. My doctor actually removed some of my tissue surgically at age 17 from the area. It was scar tissue from the first time I had attempted intercourse. I also quit taking oral contraceptives at that time. I was relatively normal for less than a year following the surgery and my stopping the pill. At 20 the pain had gotten bad enough that even without insurance or financial resources I went back to the doctor, finally getting a diagnosis. I was perscribed steroid cream. It didn't help. I was prescribed estrogen cream. It did help some. I got an IUD ( Mirena ) put in and I believe it has made me steadily worse. I have tried Lidocaine without much success. I have tried Elavil, which made me so tired and confused I couldn't function, as well as numerous off the chart drugs. I can't have sex anymore. And I have trouble sleeping because at the end of the day I am almost always in too much pain to be comfortable. My doctors also think that my Mirena does not contribute to the problem. I think that they're wrong.
October 13, 2010 - 11:02amThis Comment
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