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I really enjoyed reading your comments--so much to learn and

to my fellow nurse--

you are right
a positive antibodies result can or cannot diagnose anything anymore.

Must really confuse everyone?

For every test I have had when the results come back wether they are

positive OR negative

the Doc reply is always

""well that doesn't mean anything it could be a false negative or a false positive.""
....it is almost comical--so really how do all these tests help?

They make $$$$$$=I would rather they put unto research.

When I went to Boston to Bringhams-the specialists told me I was positive for sjogrens secondary to antibody results and the eye tests and lip biopsy-all positive,'

Like most /the docs have assured me there is a secondary disease process as well--
you can take you pic from a long list of diagnosis.

I always tell people this is not a pissing contest to see who is worse etc...
for me it was when I STOPPED looking for what was wrong--
a title-
-a name-
-an explanation--
a million tests--
-a million meds--
-and focused on ME!!
That my life took on a more positive direction.

-how am I going to live with this?

Who will help me if I need it-

-I can't work anymore and I was tops in my career

I have lost most of my friends......

I just kindof stopped asking all those questions and became ''friends'' with my pain.

It is a HUGE part of my life.

It doesnt NEED a name anymore for me.

I just treat the symptoms.

I went to rehab once to see if they could help and I laughed because everything they were teaching me I had already figured out myself!

Probably like most of you! You learn how to do certain things differently.

Doesn't do to much to complain although we all need to have a session of crabbiness from time to time.

I DO NOT want to BECOME this disease.

Learn to live one day at a time--it is sooooo true-if you try to do more you fail.

You have to work hard at it.

Get rid of the negativity around you as much as you can.
Which is difficult--
I know--
mine was my best friend from childhood.

Don't laugh but I tell every one who can to get a dog......
My dog makes me exercise when I don't want to--comforts me--never talks back haha.....