I became symptomatic in 2007 it's been an educational journey that's for sure. I currently take plaquinil/Carbamazaphine/Nadalol/
Cymbalta and have IVIG treatments every two weeks. Also just started medical Marjaauana.
With all levels this I am able to control my pain so much better. I will never be pain free this I know but at least I'm much better then I was and can function so much better. I have Sjogrens with cranial and perifrial nerve involvement with small nerve neuropathy and trigeminal neuralgia. You need to have a doctor that is a Reumetoid Immunologist. I went through a variety of different medications before finding what works for me. Some meds the side effects were worse then the disease. You need a doctor that works with you to find the right combination. It's a long journey but keep fighting