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I also have been cursed with heat related migraines for 20 years now. I used to be so active and loved being outdoors. If possible you would never catch me inside day or night. Now my life is spent being a prisoner of my own body. I can not be in temperatures over 70 degrees, I can not do any physical activity that causes me to get hot....no exercising, sports, bike riding, outdoor work, etc....my husband and children try to be understanding and my husband would so often put off activities because I couldn't do them. I finally got it through to him that it isn't fair to him or the kids so don't feel bad about doing things without me. I would be okay. I have been to many many doctors even neurologists, have done all kinds of testing and tried many many preventative medications to no avail. Reading all of the posts by all of you should probably make me feel better to show that I am not crazy or just making this all up but it doesn't. It makes me very sad because I know the misery that each and every one of you and your families are going through. I so wish that someone would figure out what to do to help us all. I have been on a quest of my own to try and find something that helps and I will continue, for us all.

March 22, 2015 - 12:32pm

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