The cyst is killing me. Misdiagnosed with cerebellar hypoplasia by the NIH. Cerebellum is compromised...I have syringobulbia as a DX and no one told me this...just found it in my file. No one will do surgery. Begging for ten years. Progressing. I am likely going to die from this and hope those reluctant surgeons pay some how. Good luck and God speed to anyone with this, diagnosed or not.
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The cyst is killing me. Misdiagnosed with cerebellar hypoplasia by the NIH. Cerebellum is compromised...I have syringobulbia as a DX and no one told me this...just found it in my file. No one will do surgery. Begging for ten years. Progressing. I am likely going to die from this and hope those reluctant surgeons pay some how. Good luck and God speed to anyone with this, diagnosed or not.
December 12, 2016 - 5:36pmThis Comment
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