I believe in going with the best of the best. This is a very rare problem that many doctors, even some neurosurgeons do not believe is a problem for people. Primarily because arachnoid cysts are considered to be a non-symptomatic anomaly. There are a couple of places that I would recommend seeking help from, one is Dr. Ben Carson in Bbaltimore, Dr. Spetzler, or one of his partners if he does not deal with pediatrics, at Barrow's Neurological Institute in Phoenix, AZ, or a pediatric neurosurgeon at Duke Hospital in North Carolina. It is worth the travel to get a good neurosurgeon, one who not only knows how to treat arachnoid cysts, but one who "believes" in you and your son. I had to travel to Phoenix, to Barrow's Neurological Institute from Albuquerque, 8 hours each way, to get my surgeries and be hospitalized for my sagging brain and Chiari. I may myself have to travel to New York from North Carolina for a surgeon who deals with Chiari, and to have surgery for it this coming year. I will travel to get a good doctor, one who believes me and in my case. Let me know if I can be of any other assistance.
You have to believe that something is wrong with your son if there is. Other people, including doctors may not, but if you know something isn't right, and he's been diagnosed with a cyst, you have to be able to believe that he needs treatment. I got a lot of the same treatment from doctors tellng me that my problems were not the result of my cyst, and I did not believe them. I knew it was. When I had Dr. Spetzler at Barrow's in Phoenix review my films, etc., he confirmed they were related. It sometimes takes going through several doctors to find the one who knows, understands these cysts, and believes you.
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I believe in going with the best of the best. This is a very rare problem that many doctors, even some neurosurgeons do not believe is a problem for people. Primarily because arachnoid cysts are considered to be a non-symptomatic anomaly. There are a couple of places that I would recommend seeking help from, one is Dr. Ben Carson in Bbaltimore, Dr. Spetzler, or one of his partners if he does not deal with pediatrics, at Barrow's Neurological Institute in Phoenix, AZ, or a pediatric neurosurgeon at Duke Hospital in North Carolina. It is worth the travel to get a good neurosurgeon, one who not only knows how to treat arachnoid cysts, but one who "believes" in you and your son. I had to travel to Phoenix, to Barrow's Neurological Institute from Albuquerque, 8 hours each way, to get my surgeries and be hospitalized for my sagging brain and Chiari. I may myself have to travel to New York from North Carolina for a surgeon who deals with Chiari, and to have surgery for it this coming year. I will travel to get a good doctor, one who believes me and in my case. Let me know if I can be of any other assistance.
You have to believe that something is wrong with your son if there is. Other people, including doctors may not, but if you know something isn't right, and he's been diagnosed with a cyst, you have to be able to believe that he needs treatment. I got a lot of the same treatment from doctors tellng me that my problems were not the result of my cyst, and I did not believe them. I knew it was. When I had Dr. Spetzler at Barrow's in Phoenix review my films, etc., he confirmed they were related. It sometimes takes going through several doctors to find the one who knows, understands these cysts, and believes you.
Good luck,
August 27, 2009 - 1:10pmMaria
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