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I live in Bartow Fl and have Blue cross Blue shield. I am near both all childrens in tampa and arnold palmer in orlando dont know if either one of these have specialists with extensive prior exp. there is also shriners in gainsville fl that is atleast in the state. if u could let me know if any of these have groups that will be able to get us headed in the right direction it would be very helpful thank u in advance for your help and experiences they have made it atleast less difficult to know that lot of people have the same trouble with this situation