It sounds like you are going through a lot. I am sorry that you feel so bad and aren't getting the answers you need to get rid of the headaches. If I had to recommend anyone to you, especially because you are alredy out west, I would recommend Barrow's Neurological Center, specifically Dr. Robert Spetzler. What you can do is call them and get the address for where you can send a letter and your MRI to him to read. He will charge you a fee to do this, but it is so worth it. I want to say it is like $100.00 for him to reveiew your films (without you there) and give you his opinion. He will have a resident call you to tell you if he'd like to see you or what. For me, he looked at my films and his resident called a couple of days later and toe me I needed (or Dr. Spetzler recommended) brain surgery.
I had sent him a letter describing all my symptoms to go with my films, so he knew exactly what I was dealing with. I then had to travel to Phoenix to see him, and my surgery was for the very next morning, the day after I saw him for the first time. Although that was very different from any other doctor's way of doing things that I'd experienced, it was still an amazing experience because he understands these cysts well. He is very intune with the brain, arachnoid cysts, and what they are capable of. If anyone will understand and know how to help you, it is him, Dr. Robert Spetzler. For me, the 8 hour drive from NM was so worth the trip. I would have traveled any distance to see him, knowing now, what he is capable of, and what he did for me. Other than him, I am not familiar with other neurosurgeons out west, but you can do your research for your state or your area. If you need help, let me know.
Good luck and don't give up. You can find help for your cyst. You just have to have faith and be persistent. Never give up!
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Hi Grayna,
It sounds like you are going through a lot. I am sorry that you feel so bad and aren't getting the answers you need to get rid of the headaches. If I had to recommend anyone to you, especially because you are alredy out west, I would recommend Barrow's Neurological Center, specifically Dr. Robert Spetzler. What you can do is call them and get the address for where you can send a letter and your MRI to him to read. He will charge you a fee to do this, but it is so worth it. I want to say it is like $100.00 for him to reveiew your films (without you there) and give you his opinion. He will have a resident call you to tell you if he'd like to see you or what. For me, he looked at my films and his resident called a couple of days later and toe me I needed (or Dr. Spetzler recommended) brain surgery.
I had sent him a letter describing all my symptoms to go with my films, so he knew exactly what I was dealing with. I then had to travel to Phoenix to see him, and my surgery was for the very next morning, the day after I saw him for the first time. Although that was very different from any other doctor's way of doing things that I'd experienced, it was still an amazing experience because he understands these cysts well. He is very intune with the brain, arachnoid cysts, and what they are capable of. If anyone will understand and know how to help you, it is him, Dr. Robert Spetzler. For me, the 8 hour drive from NM was so worth the trip. I would have traveled any distance to see him, knowing now, what he is capable of, and what he did for me. Other than him, I am not familiar with other neurosurgeons out west, but you can do your research for your state or your area. If you need help, let me know.
Good luck and don't give up. You can find help for your cyst. You just have to have faith and be persistent. Never give up!
Good luck to you...you are in my thoughts!
March 22, 2010 - 4:35pmMaria
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