Hi all, Well after reading here about the many different doctors that are out there for us to see, I have contacted those near to me, Duke, Barrows and Skull Base for 2nd opinions......What I have taken from these posts, other than the wonderful information of course, is the knowledge, that if I dont take charge of this situation and make this an issue with my doctors at kaiser, nothing would ever change. As of now I am completely off seizure meds. My brain fog has cleared, ( all my symptoms are still with me) and I feel ready for the fight...Like maria I am at the point where I have to sleep upright as the apnea keeps me up all night when my head is lowered to level. The pressure in my head is intense and my memory and cognative skills are impared....but....I feel that there is finally a light at the end of this long dark tunnel.Hopefully its not a train coming my way.....Thank you Maria for this blog, yours' and all the others who post their stories give hope to those of us still struggling with this condition....I'll try to keep you informed on the outcome....Thank you once again all...Ray
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Hi all, Well after reading here about the many different doctors that are out there for us to see, I have contacted those near to me, Duke, Barrows and Skull Base for 2nd opinions......What I have taken from these posts, other than the wonderful information of course, is the knowledge, that if I dont take charge of this situation and make this an issue with my doctors at kaiser, nothing would ever change. As of now I am completely off seizure meds. My brain fog has cleared, ( all my symptoms are still with me) and I feel ready for the fight...Like maria I am at the point where I have to sleep upright as the apnea keeps me up all night when my head is lowered to level. The pressure in my head is intense and my memory and cognative skills are impared....but....I feel that there is finally a light at the end of this long dark tunnel.Hopefully its not a train coming my way.....Thank you Maria for this blog, yours' and all the others who post their stories give hope to those of us still struggling with this condition....I'll try to keep you informed on the outcome....Thank you once again all...Ray
August 29, 2010 - 7:56pmThis Comment
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