Hi, your story is a little bit like mine, though I ended up having over 20 surgeries because my posterior fossa arachnoid cyst caused me to have hydrocephalus. In 2003 I founded Arachnoid Cyst Awareness which is an organization solely for those suffering from arachnoid cysts and related conditions and their loved ones. We just launched an arachnoid cyst petition and a new arachnoid cyst network if you are interested in joining our community. I know our members would be interested in hearing your story. We also have an E-Magazine, and I would love to share your story via that. If you would like to check us out our website is here: http://arachnoidcystawareness.com
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Hi, your story is a little bit like mine, though I ended up having over 20 surgeries because my posterior fossa arachnoid cyst caused me to have hydrocephalus. In 2003 I founded Arachnoid Cyst Awareness which is an organization solely for those suffering from arachnoid cysts and related conditions and their loved ones. We just launched an arachnoid cyst petition and a new arachnoid cyst network if you are interested in joining our community. I know our members would be interested in hearing your story. We also have an E-Magazine, and I would love to share your story via that. If you would like to check us out our website is here: http://arachnoidcystawareness.com
March 4, 2010 - 6:06pmThis Comment
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