I understand what you mean about the isolation. I am lucky to have my family around me. Even so over the years being cut off from and cut out by my community has been very painful and didn't get easier to take over time, if anything it got harder.
I have found quite a bit of relief and ... a new sense of community since going online last spring. It is a virtual world here on the net but it can be a satisfying one, and can help to fill some of that void.
Have you thought about joining a forum, or maybe Facebook? There are CFS forums where there is no explanation necessary when you're having a messed up day, they are all in the same boat as you.
I empathize with you about the isolation. I know it is a hard burden to live with.
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I understand what you mean about the isolation. I am lucky to have my family around me. Even so over the years being cut off from and cut out by my community has been very painful and didn't get easier to take over time, if anything it got harder.
I have found quite a bit of relief and ... a new sense of community since going online last spring. It is a virtual world here on the net but it can be a satisfying one, and can help to fill some of that void.
Have you thought about joining a forum, or maybe Facebook? There are CFS forums where there is no explanation necessary when you're having a messed up day, they are all in the same boat as you.
I empathize with you about the isolation. I know it is a hard burden to live with.
November 25, 2009 - 10:42amThis Comment
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