thank you for articulating with such clarity some of the challenges facing those with CFS. i AM one of the chronic ones who live alone... and i can say honestly at times it is excrutiating. one gets very, very skilled at managing energy; making prioritising decisions; and inventing new ways to self-entertain.
there is a wonderful book called The Healing Wisdom of Africa, by Malidoma Patrice Some. he writes evocatively of the importance of community in healing; and it grieves me to recognise we live in a culture that does not create inclusive structures for those with CFS. there is much change needed.
keep writing; telling the story; being defiant; subversive; and truth-telling. our narratives need to be added to the collective story, woven in integrally with our culture, made visible to those around us.
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thank you for articulating with such clarity some of the challenges facing those with CFS. i AM one of the chronic ones who live alone... and i can say honestly at times it is excrutiating. one gets very, very skilled at managing energy; making prioritising decisions; and inventing new ways to self-entertain.
there is a wonderful book called The Healing Wisdom of Africa, by Malidoma Patrice Some. he writes evocatively of the importance of community in healing; and it grieves me to recognise we live in a culture that does not create inclusive structures for those with CFS. there is much change needed.
keep writing; telling the story; being defiant; subversive; and truth-telling. our narratives need to be added to the collective story, woven in integrally with our culture, made visible to those around us.
March 22, 2010 - 8:36pmThis Comment
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