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I would like to answer NO never harmed my son with making him ill.

I have been accused of the lighter label of MSBP abnormal illness behaviour.......
My 7 year old son was hardly ever taken to the doctor sick at all he was well happy & had an active social life . His GP sent a letter to the consultant who took out an emergency protection order.The GP said he had no previous concerns.I now have proof of a conflict of interest they could not get enough children registered on the UK2003ALL Trials . My son had T cell leukaemia . I said no to Randomisation put your child's name in a computer the computer says if the child gets the treatment or not . At the moment they are giving boys 3 years treatment on maintenance of chemotherapy .The medical profession do not know the damage being done by this treatment at the moment . The trial is ongoing until 2012.
A mother with MSBP would have loved this situation and all of the so called attention that her child would be getting taking part in a cancer trials plus research . I asked does the mainline treatment work? Yes was the answer ,then give him that then . I said no to RANDONDMISATION just give him the mainline treatment........

I think the consultant knows now, what he wanted from me was a guinea pig . I saw the problem with the low numbers for registered children into this trial in the NEWS LETTER ALL 2003 .
We all want to know now ,just how many children removed from families in this hospital ended up in this trial under DOP Act.
How are all the child doing now walking around with the side affects of treatment.
Last question: how is the child doing who was overdosed on 800mgs of Metotrexate IV instead of 200mgs IV ?
The real MSBP is the over zealous nurse or doctor in most of these cases.

June 20, 2009 - 6:16am

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