Everything seems back to normal with the pages and comments! (At least for me!)
thanks Pat and whom ever fixed it ;)
Hopefully it stays that way.
I have a some thoughts i wanted to share, the first to "verycurious" who wrote a couple a pages ago, about taking Accutane.
I just wanted say that both isotretionin (accutane) and ketoconazole( an anti-fungal drug) in combination with hydrocortisone has sticky skin as a documented side effect! In case you missed that, I think some of us linked to those reports in the beginning of this thread. So for sure, thats the cause of your sticky skin. About tretionin induced sticky skin: http://www.ncbi.nlm.nih.gov/pubmed/10190062 And ketoconazole/cotisone induce sticky skin: http://www.prostate-cancer.org/education/andeprv/Lam_HDK.html those of you who are on this types of meds should be able to get the diagnose "sticky skin syndrome, or "aquired cutaneous adherence".
Since isotretionin is a vit A-like substance, and there have been discussions about hypervitaminose A on some other sites too, I definetely think i´ts interesting some of you have doctors that has pointed this out. I was alittle bit frustrated with the limited idea that only people on THOSE meds could have sticky skin syndrome as suggested to me when i went to a dermatologist.
However, we know sticky skin has beeen documented and associated with the above mentioned medications , bur according to the dermatoligist I seen, that would be a stickyness that was very visuable and sticky skin also when the skin is completely dry. ( they had never seen anyone with it before though, so I don´t know? ) Therefore and unfortunately I did not get that diagnosis, since my sticky skin looks quite normal when dry, Just as discribed in the origial first post here on the forum.
Diane, for example, do you have sticky skin also when dry since that paper adhered to you while at the doctors office? or is it as for me if you are a little bit moist from sweat or water it adheres, as for example sitting on a towel after the shower, then standing up and the towel adheres as a bandaid to you, and you have to peel it of, but if you would sit on a towel when you were completely dry it would not adhere?
A lot of the people commenting here has said, I have the same thing, but as the comments increase in numbers, I get a little bit confused to as if they mean the same as the first comment, sticky when moist? I would think that both people who have sticky skin when moist, and people who have it also when dry has written here, and I think it´s important to point out that theres a diffenrce. It all may be the same thing in different shapes, but this sticky when moist thing is even more strange. WHY is sticky only then...Dont get me wrong i´m sticky all the time when I have sticky episodes, but only when moist,
then I can have a couple of years or months that the syndrome completely disappear, quite sudden...If you understand what i mean
I have stopped using all soaps and creams on my hands where I´m sticky this time. and the symtomes itself does not disappear anyway. I would recommend all of you who seem to get a little improvment from time to time to stop using ALL types of skinproducts, to see if the stickyness disappears.
ten years ago with my first episode of sticky skin happened, when i had it all over my body I also noticed that some products made the stickyness less apperant, my conclusion was that oily products such as natural olive oil, kind of "masked" the stickynesfor example on the lips, preventing them to stick together,s just as someone else here mentioned powder to help with relieving the symtomes I also used to put powder under armpits, trying to prevent wounds to build upp from the friction of sticky skin, the worst areas to have sticky skin is definetly under armpits, lips etc due to the friction wuonds in my opinion, and ofcourse in your mouth and eyelids, has anyone else experienced getting these wounds from friction?
More "complicated" products as deodorants , skin creams containing many ingridients, used to make the stickyness worse, maybe simply due to water content? (as in sticky when moist?) (or allergens as allredy mentioned). . So I used to mask my symtomes with oil or powder, but of course that would only help as long as the product stayed on!
I would not get any real improvment from stop using certain products on the skin during the sticky episode, thats what i wanted to point out, I think everyone should try holding up with everything for a while, a month or two, then you could be quite sure it was an allergy. if the symptomes came back again when you use products. There migth be so many things in a products causing the sticky skin change if it´s an allergy, even so-called safe products?
Just brainstorming! trying to get out what i mean but not sure Im making sense, tired;)
Please everyone, especially new commetators it would be great if everyone tried and discribe the type of stickyness you have, Visual, non visual, sticky when moist not dry, sticky also when dry, and so on...
and it wuld be helpfull to use an account here at empowher, or use a name even
if its not a real one, as some of you did, so we are easier separated and know how many we are.
and if you write, 'I have the same thing' , be sure to point out the same as who :)
Sometimes when I have been really frustrated about this i have thought about what would happen if we all got togehter and went to the same doctor, maybe things would happen a little bit faster on the help-front ,;) In the meantime it really helps knowing you all are out there!
Take care everyone!
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Everything seems back to normal with the pages and comments! (At least for me!)
thanks Pat and whom ever fixed it ;)
Hopefully it stays that way.
I have a some thoughts i wanted to share, the first to "verycurious" who wrote a couple a pages ago, about taking Accutane.
I just wanted say that both isotretionin (accutane) and ketoconazole( an anti-fungal drug) in combination with hydrocortisone has sticky skin as a documented side effect! In case you missed that, I think some of us linked to those reports in the beginning of this thread. So for sure, thats the cause of your sticky skin. About tretionin induced sticky skin: http://www.ncbi.nlm.nih.gov/pubmed/10190062 And ketoconazole/cotisone induce sticky skin: http://www.prostate-cancer.org/education/andeprv/Lam_HDK.html those of you who are on this types of meds should be able to get the diagnose "sticky skin syndrome, or "aquired cutaneous adherence".
Since isotretionin is a vit A-like substance, and there have been discussions about hypervitaminose A on some other sites too, I definetely think i´ts interesting some of you have doctors that has pointed this out. I was alittle bit frustrated with the limited idea that only people on THOSE meds could have sticky skin syndrome as suggested to me when i went to a dermatologist.
However, we know sticky skin has beeen documented and associated with the above mentioned medications , bur according to the dermatoligist I seen, that would be a stickyness that was very visuable and sticky skin also when the skin is completely dry. ( they had never seen anyone with it before though, so I don´t know? ) Therefore and unfortunately I did not get that diagnosis, since my sticky skin looks quite normal when dry, Just as discribed in the origial first post here on the forum.
Diane, for example, do you have sticky skin also when dry since that paper adhered to you while at the doctors office? or is it as for me if you are a little bit moist from sweat or water it adheres, as for example sitting on a towel after the shower, then standing up and the towel adheres as a bandaid to you, and you have to peel it of, but if you would sit on a towel when you were completely dry it would not adhere?
A lot of the people commenting here has said, I have the same thing, but as the comments increase in numbers, I get a little bit confused to as if they mean the same as the first comment, sticky when moist? I would think that both people who have sticky skin when moist, and people who have it also when dry has written here, and I think it´s important to point out that theres a diffenrce. It all may be the same thing in different shapes, but this sticky when moist thing is even more strange. WHY is sticky only then...Dont get me wrong i´m sticky all the time when I have sticky episodes, but only when moist,
then I can have a couple of years or months that the syndrome completely disappear, quite sudden...If you understand what i mean
I have stopped using all soaps and creams on my hands where I´m sticky this time. and the symtomes itself does not disappear anyway. I would recommend all of you who seem to get a little improvment from time to time to stop using ALL types of skinproducts, to see if the stickyness disappears.
ten years ago with my first episode of sticky skin happened, when i had it all over my body I also noticed that some products made the stickyness less apperant, my conclusion was that oily products such as natural olive oil, kind of "masked" the stickynesfor example on the lips, preventing them to stick together,s just as someone else here mentioned powder to help with relieving the symtomes I also used to put powder under armpits, trying to prevent wounds to build upp from the friction of sticky skin, the worst areas to have sticky skin is definetly under armpits, lips etc due to the friction wuonds in my opinion, and ofcourse in your mouth and eyelids, has anyone else experienced getting these wounds from friction?
More "complicated" products as deodorants , skin creams containing many ingridients, used to make the stickyness worse, maybe simply due to water content? (as in sticky when moist?) (or allergens as allredy mentioned). . So I used to mask my symtomes with oil or powder, but of course that would only help as long as the product stayed on!
I would not get any real improvment from stop using certain products on the skin during the sticky episode, thats what i wanted to point out, I think everyone should try holding up with everything for a while, a month or two, then you could be quite sure it was an allergy. if the symptomes came back again when you use products. There migth be so many things in a products causing the sticky skin change if it´s an allergy, even so-called safe products?
Just brainstorming! trying to get out what i mean but not sure Im making sense, tired;)
Please everyone, especially new commetators it would be great if everyone tried and discribe the type of stickyness you have, Visual, non visual, sticky when moist not dry, sticky also when dry, and so on...
and it wuld be helpfull to use an account here at empowher, or use a name even
if its not a real one, as some of you did, so we are easier separated and know how many we are.
and if you write, 'I have the same thing' , be sure to point out the same as who :)
Sometimes when I have been really frustrated about this i have thought about what would happen if we all got togehter and went to the same doctor, maybe things would happen a little bit faster on the help-front ,;) In the meantime it really helps knowing you all are out there!
November 7, 2010 - 11:04pmTake care everyone!
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