Hi Lora!
This is Kacha again.
It was interesting reading your post!
It´s only natural that you are giving this symtomes so much attention, This is a condition that is quite hard to explain to someone who havnt had it, but, after all, our skin is the largest organ of the body, and such an imprtant organ too, we have trillions of receptors and of course we react when something is "coating" our skin in a very strange and uncomfortabe way... I´ve tried to explain to others that if they would try using glue as lotion and walk around in that for a couple of days not beeing able to wash it of, they would´nt be happy with it either. Its naturall to feel anxious abot it too. I hope that it will help to know that there are others, Unfortunately we seem to have hit a point where no one has found any help or solutions yet, but the positive side is that since 2008, when there where amost no posts or information at all about this symtomes, we now are quite alot of peolpe here. Eventually there will bee some answers i think, I just think that this is a complexe disorder...I think that you are doing the right thing with acupuncture and so on, try and eat as healhy as you can, and as the above post said no softerners etc...Keep of any unnessesary hoseholdproducts, soaps shampoos etc, use only water if possible. I´ts highly likely that this may be an allergic reaction,It may have something to do with with your water softener, if i t uses chemichals. salt definetely is te one thing making my sticky skin condition worse, so if he added more salt, maybee, if not causing it ( cuse i dont thing salt causes the condition) is making i t worse. I think plastic components and chemichals from pipes can be a factor, ive resently moved, and maybe a littlebitt better with the new water. I think the sticky skin condition may be may be caused by chemicals. Food allergy and different bacteria the serratiais is an interesting suggestion, mold or yeast perhaps. I think it may be a combination of living in a polluted environment (every humanbeeing today has hundreds of different chemicals circulating and building up in our bodies) resulting in allergys toward both the chemichals,and reactions agains naturall substances aswell as a result of the chemical load perhaps, altering of body functions such as how the skin builds, and what the skin is producing in glands...One doctor suggested that maybe the skin is producing something from its glands or pores, that similar to a kind of glue used in industries, only acts a a adherer when wet. a kind of powder glue, add water and get sticky.....I thought that was an interesting way of looking at it, since the hardest part for me to undersand is WHY only sticky when wet or actually not wet, more moist..., since many of the unnatural chemichals in our environment and body act as for example estrogen mimics and sofort, its not starnge if they might be causing strange ractions and symptomes of functions in the body, such as skin. They may be altering and makin the skin build up in the wrong way. i have posted a link to a scientiffic report about a man with sticky skin before, they found changes i n structure of the skin, check out my early posts her) I think maybee we also have troble fighting of attacs of bacteria, yeast and parasites as a result of the chemichal load....This is just my thougts and I don´t know, but for me my sticky skin definetely started after an exposure to chemichals, i think that could be the case for many others here too, we just dont think about it cause sometimes the effect comes gradually, and the causatives may bee a combination of chemicals over a period of time. I would hope ther would be an easy answer, such as a bacteria causing it, but for now I´m leanig towards a more complew answer. What would be helpful, perhaps, is if someone could get an biopsy done, someone who looked at the skin in a microscope trying to determine is there actuall changes in skin structure, is, ther a "caoting" or what. One way could bee to, for those of us living nearby eatchother, going together to see doctors, I think that we are so easy to dismiss just bacause we are alone, and doctors never heard of i t before. I live in Sweden and I think most of you live in the US? Some of You in the UK? Guess its not an easy thing, but would be helpful i think to go to doctors in group.
M.E (myalgic encephalemyelitis) is a neuro-immune disorder. I´ve had it since i fisrt got sticky skin so I definitey think the two are connected in some way...).It causes malfunction of the immunesytem, prone to infections, troble with the nerveous system, hormonal issues, great exhaustion,( why Im not able to write often) decreased oxygen support to the brain, trouble with the bloodpressure, posural tachyardia syndrome and sofort... All of this started after an exposure to chemical in 2001. I so regognize about the bleeding gums, and i think that is what makes it so uncomfortable, you can feel the coating not only on your skin but in you mouth and throat and eyes and nose ( and intestines) too... When i went to my dentists one time he and the nurse were wery surprised over the fact that the tampon got stuck on my gums, you know, the cotton swab thing thy use to keep away saliva...the could´nt get it ot of the mouth it stuck so bad...they had never seen any thing like it, ha ha...i was not surprised i can say, used to towels and stuff sticking to me after the shower and when sleeping.
For me the firts time i was sticki it lasted about two years and the things i did (I cant go in to every detail here ) was to eat boidynamic, drink lots of water, remove milk and wheat from my diet, doing different types of eastern medicine such as Qi gong, and I also did something similar to what you have tried, with the little Qui. machine ;) and actually, all of my internal meridians wher very low too, and we where able to get those up eventually,I think 13 treatments, the nurse who helped me with that worked at a doctors office where the doctor also was into alternative methods,(he was a professor in clinical chemistry aswel)..he gave me large doses of vitamin C in IV once or twice a week, to try and detoxyfy the body, and I did this Actupunture Machine at the same time....I would like to point out thougt, that I think it was my hard work with the diet and qigong , and also several different cleanses, like bow cleanses, liver cleanses, (go yo you a helath shop and ask, The program I used where Robert grays if you wat to look into that.) I think that made my bode more prone to that eventual response of the treatment of the meridians and the IV with vit C....anyhow, If you can, keep dooing acupunctunture, go to chinese doctor, I thing that is a great supporter for your body. There are plenty of antimicrobal herbs you could try, and a doctor knowledgable i eastern medicine would have a lot of suggestions I think. I´ve done different types, and i cant point out wich ones are effective I just think everything I did helped. Since whe dont know the cause the onlu thing is to try and fight it with a broad spectra...I would recommed perhaps doing liver or bow claense first, (the simple clear out stuff before you put good thngs in theory ;) and then take supplemnts and herbs, when you get you result from the hair sample.... a broad spectra of both mineral, traceminerals. antioxidants and diet high in all of that.... NEVER EVER take high doses of any vitamin without a doctors firm knowledge, I had MAJOR drawbacks when I took large doses of only vitamin B,, and ONLY vitamin Bs,( there are aot of nutritionalists out there who do not know whar they are doing) Alwas take broadspectra, and if you want to take high doses of anything else, be carefull. Im doing high doses vitamine D right know, am I little anxious about it beeing toxic but my M.E doctor dicovered i was very low in my values) Again to try to keep of milk for a year could be a great help... I think that waas one of the thing that made a grater difference for me....I ve read a lot of books about hidden foodallegys, milk and wheta often beeing a catalysator for secondary allergies... keep of sugars!!! It took two years of this for me, and i did get much much better almost as before!! in 2003 with the stickyness, and for a long period of time after that, but unfortunately with the M.E cindition still remaining...Why I ended up getting sticky again,in 2007-8 and why the onset have been so sudden for me both times it has come back is a puzzIe.I would think sudden onset= allergy, chemichal reaction, ( plastic cast with isocyanates) but it could just as easy be a baceria or just a bulid up of things in the body that culminates. The positive thing is that as sudden as the onset was,one of my "episodes" in 2008 , lasted only seven weeks and disappeared sudden, so if you are lucky ther is a possibility it migth for u too) ( this time howevwr it has been really subborn for two and a halv years, but only on hands anf feet) i hope this info will help you in any way, TAKE CARE!
/Kacha
Comment Reply
Hi Lora!
July 25, 2011 - 1:12pmThis is Kacha again.
It was interesting reading your post!
It´s only natural that you are giving this symtomes so much attention, This is a condition that is quite hard to explain to someone who havnt had it, but, after all, our skin is the largest organ of the body, and such an imprtant organ too, we have trillions of receptors and of course we react when something is "coating" our skin in a very strange and uncomfortabe way... I´ve tried to explain to others that if they would try using glue as lotion and walk around in that for a couple of days not beeing able to wash it of, they would´nt be happy with it either. Its naturall to feel anxious abot it too. I hope that it will help to know that there are others, Unfortunately we seem to have hit a point where no one has found any help or solutions yet, but the positive side is that since 2008, when there where amost no posts or information at all about this symtomes, we now are quite alot of peolpe here. Eventually there will bee some answers i think, I just think that this is a complexe disorder...I think that you are doing the right thing with acupuncture and so on, try and eat as healhy as you can, and as the above post said no softerners etc...Keep of any unnessesary hoseholdproducts, soaps shampoos etc, use only water if possible. I´ts highly likely that this may be an allergic reaction,It may have something to do with with your water softener, if i t uses chemichals. salt definetely is te one thing making my sticky skin condition worse, so if he added more salt, maybee, if not causing it ( cuse i dont thing salt causes the condition) is making i t worse. I think plastic components and chemichals from pipes can be a factor, ive resently moved, and maybe a littlebitt better with the new water. I think the sticky skin condition may be may be caused by chemicals. Food allergy and different bacteria the serratiais is an interesting suggestion, mold or yeast perhaps. I think it may be a combination of living in a polluted environment (every humanbeeing today has hundreds of different chemicals circulating and building up in our bodies) resulting in allergys toward both the chemichals,and reactions agains naturall substances aswell as a result of the chemical load perhaps, altering of body functions such as how the skin builds, and what the skin is producing in glands...One doctor suggested that maybe the skin is producing something from its glands or pores, that similar to a kind of glue used in industries, only acts a a adherer when wet. a kind of powder glue, add water and get sticky.....I thought that was an interesting way of looking at it, since the hardest part for me to undersand is WHY only sticky when wet or actually not wet, more moist..., since many of the unnatural chemichals in our environment and body act as for example estrogen mimics and sofort, its not starnge if they might be causing strange ractions and symptomes of functions in the body, such as skin. They may be altering and makin the skin build up in the wrong way. i have posted a link to a scientiffic report about a man with sticky skin before, they found changes i n structure of the skin, check out my early posts her) I think maybee we also have troble fighting of attacs of bacteria, yeast and parasites as a result of the chemichal load....This is just my thougts and I don´t know, but for me my sticky skin definetely started after an exposure to chemichals, i think that could be the case for many others here too, we just dont think about it cause sometimes the effect comes gradually, and the causatives may bee a combination of chemicals over a period of time. I would hope ther would be an easy answer, such as a bacteria causing it, but for now I´m leanig towards a more complew answer. What would be helpful, perhaps, is if someone could get an biopsy done, someone who looked at the skin in a microscope trying to determine is there actuall changes in skin structure, is, ther a "caoting" or what. One way could bee to, for those of us living nearby eatchother, going together to see doctors, I think that we are so easy to dismiss just bacause we are alone, and doctors never heard of i t before. I live in Sweden and I think most of you live in the US? Some of You in the UK? Guess its not an easy thing, but would be helpful i think to go to doctors in group.
M.E (myalgic encephalemyelitis) is a neuro-immune disorder. I´ve had it since i fisrt got sticky skin so I definitey think the two are connected in some way...).It causes malfunction of the immunesytem, prone to infections, troble with the nerveous system, hormonal issues, great exhaustion,( why Im not able to write often) decreased oxygen support to the brain, trouble with the bloodpressure, posural tachyardia syndrome and sofort... All of this started after an exposure to chemical in 2001. I so regognize about the bleeding gums, and i think that is what makes it so uncomfortable, you can feel the coating not only on your skin but in you mouth and throat and eyes and nose ( and intestines) too... When i went to my dentists one time he and the nurse were wery surprised over the fact that the tampon got stuck on my gums, you know, the cotton swab thing thy use to keep away saliva...the could´nt get it ot of the mouth it stuck so bad...they had never seen any thing like it, ha ha...i was not surprised i can say, used to towels and stuff sticking to me after the shower and when sleeping.
For me the firts time i was sticki it lasted about two years and the things i did (I cant go in to every detail here ) was to eat boidynamic, drink lots of water, remove milk and wheat from my diet, doing different types of eastern medicine such as Qi gong, and I also did something similar to what you have tried, with the little Qui. machine ;) and actually, all of my internal meridians wher very low too, and we where able to get those up eventually,I think 13 treatments, the nurse who helped me with that worked at a doctors office where the doctor also was into alternative methods,(he was a professor in clinical chemistry aswel)..he gave me large doses of vitamin C in IV once or twice a week, to try and detoxyfy the body, and I did this Actupunture Machine at the same time....I would like to point out thougt, that I think it was my hard work with the diet and qigong , and also several different cleanses, like bow cleanses, liver cleanses, (go yo you a helath shop and ask, The program I used where Robert grays if you wat to look into that.) I think that made my bode more prone to that eventual response of the treatment of the meridians and the IV with vit C....anyhow, If you can, keep dooing acupunctunture, go to chinese doctor, I thing that is a great supporter for your body. There are plenty of antimicrobal herbs you could try, and a doctor knowledgable i eastern medicine would have a lot of suggestions I think. I´ve done different types, and i cant point out wich ones are effective I just think everything I did helped. Since whe dont know the cause the onlu thing is to try and fight it with a broad spectra...I would recommed perhaps doing liver or bow claense first, (the simple clear out stuff before you put good thngs in theory ;) and then take supplemnts and herbs, when you get you result from the hair sample.... a broad spectra of both mineral, traceminerals. antioxidants and diet high in all of that.... NEVER EVER take high doses of any vitamin without a doctors firm knowledge, I had MAJOR drawbacks when I took large doses of only vitamin B,, and ONLY vitamin Bs,( there are aot of nutritionalists out there who do not know whar they are doing) Alwas take broadspectra, and if you want to take high doses of anything else, be carefull. Im doing high doses vitamine D right know, am I little anxious about it beeing toxic but my M.E doctor dicovered i was very low in my values) Again to try to keep of milk for a year could be a great help... I think that waas one of the thing that made a grater difference for me....I ve read a lot of books about hidden foodallegys, milk and wheta often beeing a catalysator for secondary allergies... keep of sugars!!! It took two years of this for me, and i did get much much better almost as before!! in 2003 with the stickyness, and for a long period of time after that, but unfortunately with the M.E cindition still remaining...Why I ended up getting sticky again,in 2007-8 and why the onset have been so sudden for me both times it has come back is a puzzIe.I would think sudden onset= allergy, chemichal reaction, ( plastic cast with isocyanates) but it could just as easy be a baceria or just a bulid up of things in the body that culminates. The positive thing is that as sudden as the onset was,one of my "episodes" in 2008 , lasted only seven weeks and disappeared sudden, so if you are lucky ther is a possibility it migth for u too) ( this time howevwr it has been really subborn for two and a halv years, but only on hands anf feet) i hope this info will help you in any way, TAKE CARE!
/Kacha
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