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Dear MJK,

I'm so sorry to hear about your insensitive doctor's. If you no longer have faith in any of them, I would recommend doing some research on others in your area.

To have Cushing's syndrome doesn't mean that you have taken or take cortisone or corticosteroids, though that can also be the reason why the disease develops. Your adrenal gland may be producing to much cortisol-- which may lead to cushing's syndrome. Have you had your pituitary gland checked?

The "typical" person with Cushing's has the following symptoms:
* Fat deposits can form around your stomach and upper back, but arms and legs stay thin and don't usually get fatter.
* Your skin gets thinner and is easily bruised.
* Cuts, scratches and insect bites take a long time to heal.
* Pink or purple stretch marks may form on your skin.
* Your face may become round and puffy.
* You may feel tired and have weak muscles.
* You may feel depressed.
* Women usually have irregular menstrual periods and may grow thick or more visible body hair.
* High blood pressure, osteoporosis (weak and brittle bones) and blood sugar levels that are higher than normal can be signs of Cushing's syndrome or disease.
* You often get skin infections or other infections, and they take longer to heal.
* Fat deposits can form around your stomach and upper back, but arms and legs stay thin and don't usually get fatter.
* Your skin gets thinner and is easily bruised.
* Cuts, scratches and insect bites take a long time to heal.
* Pink or purple stretch marks may form on your skin.
* Your face may become round and puffy.
* You may feel tired and have weak muscles.
* You may feel depressed.
* Women usually have irregular menstrual periods and may grow thick or more visible body hair.
* High blood pressure, osteoporosis (weak and brittle bones) and blood sugar levels that are higher than normal can be signs of Cushing's syndrome or disease.
* You often get skin infections or other infections, and they take longer to heal.

A simple blood and urine test can detect Cushing's syndrome. At some point you may need yet another CT or MRI to take a look at your pituitary gland and other parts of your body.
Perhaps one of the reason's why you got the "ho, ho" from your doctors is because they didn't find anything wrong with your pituitary gland and you are not on any corticosteroids to cause this disease. I would seek a second (or 6th) opinion from a different doctor and take it from there. Remember that this is your health and you can only help yourself if you work with people who you trust.

Good Luck, please keep us posted

August 25, 2009 - 6:13pm

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