I'm sorry that you've dealt with such pain for so many years. At the risk of finding you information you already know, here are some current sources about arachnoiditis.
This page from spineuniverse.com discusses pain management and electric nerve stimulation:
Are you aware of the Circle of Friends With Arachnoiditis (COFWA)? They work for awareness, education and progress in treatment. Here is their home page:
http://www.cofwa.org/
And down the side there is a link to a Yahoo! Groups listing for COFWA where members write to one another:
http://health.groups.yahoo.com/group/cofwa/
(Click on the blue "Join This Group!" box in the upper right)
There is a book called Arachnoiditis: The Silent Epidemic written by J. Antonio Aldrete, M.D., M.S. (a doctor in Birmingham) that you might be interested in checking out. He sells it himself. This page discusses the book and its table of contents:
http://www.arachnoiditis.com/book.asp
As you know, there is no "cure" for arachnoiditis, so treatment tends to concentrate on pain and symptom management. Do you feel that your pain is being properly addressed? Has physical therapy helped you at all?
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Sue,
I'm sorry that you've dealt with such pain for so many years. At the risk of finding you information you already know, here are some current sources about arachnoiditis.
This page from spineuniverse.com discusses pain management and electric nerve stimulation:
http://www.spineuniverse.com/displayarticle.php/article180.html
Are you aware of the Circle of Friends With Arachnoiditis (COFWA)? They work for awareness, education and progress in treatment. Here is their home page:
http://www.cofwa.org/
And down the side there is a link to a Yahoo! Groups listing for COFWA where members write to one another:
http://health.groups.yahoo.com/group/cofwa/
(Click on the blue "Join This Group!" box in the upper right)
There is a book called Arachnoiditis: The Silent Epidemic written by J. Antonio Aldrete, M.D., M.S. (a doctor in Birmingham) that you might be interested in checking out. He sells it himself. This page discusses the book and its table of contents:
http://www.arachnoiditis.com/book.asp
As you know, there is no "cure" for arachnoiditis, so treatment tends to concentrate on pain and symptom management. Do you feel that your pain is being properly addressed? Has physical therapy helped you at all?
September 18, 2009 - 9:05amThis Comment
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