This was a great article, and I had no idea about the depth of this illness (I still don't, but this article helped illustrate it to someone who does not have this condition).
Could you write an article about the Top 10 Things You SHOULD Say to Someone with CFS? What is helpful? I wrote an article for college students about how to help someone with an eating disorder, with some sample scripts of what would be helpful, that was to be used by someone who has little or no understanding of the disease. I think the same could be helpful for "How to Help Someone with CFS" that is meant to be read by family and friends.
Thank you!! I still don't understand this condition, and am curious to read more about how you do live day-to-day. I'm not sure if this is offensive to say (please tell me if it is, as I'm learning!), but as a mom of a newborn, I have been literally sleep-deprived for 10 weeks, and in tears more days-than-not out of sheer lack of sleep, the worry that this is never-ending, the fear of the heart-wrenching wails and cries from the newborn in the middle of the night. The tears are from pure exhaustion, not knowing how much more I can take There is a real physical pain from not sleeping. But, that is where the comparison stops, because I know that I am not dealing with a disease/condition, but with a newborn that I can escape from for a few minutes (unlike CFS), it is not chronic (although, when you are going through it minute-by-minute, it feels as though it is), and there are the rewards that the newborn gives back eventually. My comparison is only that I understand the sheer exhaustion and physical pain aspects of it, if only for a few weeks, and can not understand how you go about your day-to-day life? Sleep deprivation is severely debilitating, and then you say that CFS is not only about "not sleeping", but there are so many other symptoms.
Take care, and I look forward to learning more from you about CFS.
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This was a great article, and I had no idea about the depth of this illness (I still don't, but this article helped illustrate it to someone who does not have this condition).
Could you write an article about the Top 10 Things You SHOULD Say to Someone with CFS? What is helpful? I wrote an article for college students about how to help someone with an eating disorder, with some sample scripts of what would be helpful, that was to be used by someone who has little or no understanding of the disease. I think the same could be helpful for "How to Help Someone with CFS" that is meant to be read by family and friends.
Thank you!! I still don't understand this condition, and am curious to read more about how you do live day-to-day. I'm not sure if this is offensive to say (please tell me if it is, as I'm learning!), but as a mom of a newborn, I have been literally sleep-deprived for 10 weeks, and in tears more days-than-not out of sheer lack of sleep, the worry that this is never-ending, the fear of the heart-wrenching wails and cries from the newborn in the middle of the night. The tears are from pure exhaustion, not knowing how much more I can take There is a real physical pain from not sleeping. But, that is where the comparison stops, because I know that I am not dealing with a disease/condition, but with a newborn that I can escape from for a few minutes (unlike CFS), it is not chronic (although, when you are going through it minute-by-minute, it feels as though it is), and there are the rewards that the newborn gives back eventually. My comparison is only that I understand the sheer exhaustion and physical pain aspects of it, if only for a few weeks, and can not understand how you go about your day-to-day life? Sleep deprivation is severely debilitating, and then you say that CFS is not only about "not sleeping", but there are so many other symptoms.
Take care, and I look forward to learning more from you about CFS.
June 1, 2010 - 8:08pmThis Comment
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