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Hello Jodi -
I'm so sorry to learn about the problems your daughter has experienced, and that you've also experienced as her mother. It must have been frightening and painful for you to go through this for almost two years.
You mentioned that you've formed a group of mothers with young daughters who've had the same experiences. Can you please share more information about the group - when it was formed, your goals, and so forth. If another parent reads this, and wants to get involved, what do they need to do?
Thank you Jodi for taking the time to reach out to others through your post, and I hope we will all be able to learn more from the research you've done, and your persistence in following through on the care needed for Victoria.
Take good care,
Pat

November 3, 2009 - 5:38pm

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