i llllllll ................ The website has not been the greatest...
I'm told, after 7 years with pulmonary fibrosis and hypertension, that I'm at end stage. I have 30% lung function. I've been on oxygen for about six years. As long as I'm sitting, I feel fine. I am out of breath if I walk more than 10-15 feet. Because of other conditions (diabetes; I get transfusions for low red blood cell and HGB counts; kidneys are beginning to fail), I am not a transplant candidate. At age 64, the Doctor has basically said "good bye and good luck - I probably won't see you again". I feel like it's not the END... but what is the "end" going to be like. What should I expect and what should I prepare my family for? I'm serious -- what can I physically expect the END to be like? Why can't I get a straight answer?
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i llllllll ................ The website has not been the greatest...
April 26, 2011 - 5:35pmI'm told, after 7 years with pulmonary fibrosis and hypertension, that I'm at end stage. I have 30% lung function. I've been on oxygen for about six years. As long as I'm sitting, I feel fine. I am out of breath if I walk more than 10-15 feet. Because of other conditions (diabetes; I get transfusions for low red blood cell and HGB counts; kidneys are beginning to fail), I am not a transplant candidate. At age 64, the Doctor has basically said "good bye and good luck - I probably won't see you again". I feel like it's not the END... but what is the "end" going to be like. What should I expect and what should I prepare my family for? I'm serious -- what can I physically expect the END to be like? Why can't I get a straight answer?
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