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wow!! when i read this, i thought, was this something i posted a while back? i too have wondered this same question. 2 years ago when i had my first child, the anesthesiologist could not get the epidural placed right, and he tried over and over as well. my family and i took pictures a few days later, and all in all we could count close to 30 different hole pokes...and that is not counting places where he made multiple attempts in the same spot. my life is not the same. i have not been able to work and doing every day tasks is difficult. i too have been to pain docs, neuros, p.t., massage, ortho surgeons, etc etc etc. i dont get help, because no tests show any damage and also because no docs want to deal with something taht was caused by another doc. sometimes i will do ok for a few weeks, meaning, i can control the pain with meds, rest, heat and other tools so that it doesnt dominate my day. but than boom, all ofthe sudden i get a few terrible months where my life is miserable.

when this first happened, i did so much research, and the one thing i found that matched all of my symptoms and sounded like it could be caused by a needle going into your back over and over,, was arachnoiditis. but no one will listen to me when i bring it up. mainly, i think, because they dont know the answers. i am sueing the doc that did this to me, but his rebuttle is that there is no "standard of care" in his field. which means that there is no written rule that says an anesthesiologist can't poke you as many times as he deems necessary. even though, i have talked to soooo many docs who have said that 5 times is the max time they woudl ever attempt to place the epidural. the doc who did it to me doesnt even know hwo many times he tried.

i dont know what else to say other than maybe with my lawsuit i can get a "standard of care" in place. what idiot would do that to someone's spine/?!!! i am not all about suing doctors but i cannot describe how this has changed me. i was just thinking today, i want my life back!! i want my own mind and my own body. i cant live around and inside of the pain anymore. but the sad truth is that i might ahve to. i also know that it could be worse, but for me, when a lot of my hopes and dreams have been crushed becuz of my physical and emotional limitations, that doesn't help. please keep in touch with me. maybe we can find others who have been through this. in my mind, its like we have something that hasn't even been discovered or named yet, but that does not mean it should be ignored and written off as "nothing." if more people came forward maybe they would realize that this is real and it is NOT OK!!!!!!!!!!!!!! i am so sorry for what you are going through. i dont have a lot of the symtoms that you have such as the urination probs, but i do have literally NO sex drive and headaches all of the time, my appetite is messed up and i almost always feel sick to my stomach. i also have tried exercising, people act like i am lazy or something, but when i exercise it is so painful. but i dont care because if it will prevent me from getting worse i will do it. thats all i can hope for now, is that it does not get worse. i hope you dont either. i hope to hear from you again!!!

February 25, 2010 - 4:06pm

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