I am here. Or should I say, still here. I have had Devic's disease since 1985. No one knew what it was. I sarted with optic neuritis, sent into remission and relapsed strongly in 1992 with transverse myelitis. I have been on steriods/immunisuppressants for decades. 7 years ago another respite of remission. Just 2 months ago, the devil is back with a vengence. I am looking to have a plasma exchange as the steriods are not working. Currently waiting for Cellcept to work but that can take 6 months to be effective - I don't have that amount of time.
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I am here. Or should I say, still here. I have had Devic's disease since 1985. No one knew what it was. I sarted with optic neuritis, sent into remission and relapsed strongly in 1992 with transverse myelitis. I have been on steriods/immunisuppressants for decades. 7 years ago another respite of remission. Just 2 months ago, the devil is back with a vengence. I am looking to have a plasma exchange as the steriods are not working. Currently waiting for Cellcept to work but that can take 6 months to be effective - I don't have that amount of time.
March 4, 2012 - 10:13pmThis Comment
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