HI! My son is 7 years old & has Devic's Disease (neuromyelitis optica). He has been fighting this disease for almost 2.5 years now. While NMO is rare, there is a whole group of us. Our support group is here:
http://groups.google.com/group/devics-support
You can apply for membership, or if you send me your email, I can invite you to join. Our group would love to have you join in. We are a close knit group & our members are growing. Please come over & talk to us, read our stories & ask questions. We are all there to help one another. Our group is made up of patients & care givers, plus some from the medical profession. Look forward to hearing from you!
Lisa (mommy to Collin, my 7yo with NMO)
www.collinsquest.org
(Personal email address removed by EmpowHER Moderator.)
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HI! My son is 7 years old & has Devic's Disease (neuromyelitis optica). He has been fighting this disease for almost 2.5 years now. While NMO is rare, there is a whole group of us. Our support group is here:
http://groups.google.com/group/devics-support
You can apply for membership, or if you send me your email, I can invite you to join. Our group would love to have you join in. We are a close knit group & our members are growing. Please come over & talk to us, read our stories & ask questions. We are all there to help one another. Our group is made up of patients & care givers, plus some from the medical profession. Look forward to hearing from you!
Lisa (mommy to Collin, my 7yo with NMO)
March 10, 2010 - 7:54amwww.collinsquest.org
(Personal email address removed by EmpowHER Moderator.)
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