Hi,
Thanks for writing. First, so sorry for all your troubles. Brain issues are so traumatic because we need and rely on our brains for everything having to do with our bodies. You have some similarities to my case. My arachnoid cyst is at the back of my brain and very large. It takes up over 1/3 of my brain. You may want to look into getting my book, "It's all in Your Head," Maria McCutchen....avail on Amazon and wherever books are sold. You can see what I went through, though even more has happened since writing it and now, it is believed that I may be having nocturnal seizures. I ahven't had that confirmed yet, but what I have found is that I have to sleep on my right side only. I cannot sleep on my back or my left side or I get these horrific symptoms that make me feel horrible.....extreme sudden dizziness, terrible weakness, I can't walk because I have no balance all of a sudden. I just have to roll over to my right side and let things settle down before I attempt to get up. I went through a divorce a year and a half ago after 13 years of marriage and two boys, due to my ex losing his compassion for what I was left to live with. Not to mention he was verbally, mentally and emotionally abusive. So that certainly didn't help my health. Anyways, a few years ago I decided to tell my story because it was such an unusual story and many doctors just blew me off, claiming these cysts are normally asymptomatic.
Anyway, there are a lot of similiarities I see, to your story. I would just keep searching for that one neurosurgeon who understands brain cysts. To me, that is your best bet. You can also follow my blog...www.arachnoidcystsupport.blogspot.com where I give bits and pieces of my story and helpful information for those who live with brain cysts. Things I've learned along the way.
You can also reach me personally at [email protected] if you ever need to talk or have any questions that I may be able to answer for you.
Take care, and don't give up. If I had given up....it would have been long ago and I wouldn't be here with my boys today. It may not seem like it, but things do get better and they can turn around. You just have to be persistent and work at finding the one doctor who will listen to you and believe you - believe in your case.
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Hi,
Thanks for writing. First, so sorry for all your troubles. Brain issues are so traumatic because we need and rely on our brains for everything having to do with our bodies. You have some similarities to my case. My arachnoid cyst is at the back of my brain and very large. It takes up over 1/3 of my brain. You may want to look into getting my book, "It's all in Your Head," Maria McCutchen....avail on Amazon and wherever books are sold. You can see what I went through, though even more has happened since writing it and now, it is believed that I may be having nocturnal seizures. I ahven't had that confirmed yet, but what I have found is that I have to sleep on my right side only. I cannot sleep on my back or my left side or I get these horrific symptoms that make me feel horrible.....extreme sudden dizziness, terrible weakness, I can't walk because I have no balance all of a sudden. I just have to roll over to my right side and let things settle down before I attempt to get up. I went through a divorce a year and a half ago after 13 years of marriage and two boys, due to my ex losing his compassion for what I was left to live with. Not to mention he was verbally, mentally and emotionally abusive. So that certainly didn't help my health. Anyways, a few years ago I decided to tell my story because it was such an unusual story and many doctors just blew me off, claiming these cysts are normally asymptomatic.
Anyway, there are a lot of similiarities I see, to your story. I would just keep searching for that one neurosurgeon who understands brain cysts. To me, that is your best bet. You can also follow my blog...www.arachnoidcystsupport.blogspot.com where I give bits and pieces of my story and helpful information for those who live with brain cysts. Things I've learned along the way.
You can also reach me personally at [email protected] if you ever need to talk or have any questions that I may be able to answer for you.
Take care, and don't give up. If I had given up....it would have been long ago and I wouldn't be here with my boys today. It may not seem like it, but things do get better and they can turn around. You just have to be persistent and work at finding the one doctor who will listen to you and believe you - believe in your case.
Take care,
Maria
July 29, 2012 - 2:40pmThis Comment
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