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Anonymous

Hi Maria,

I want to send out my films and brief history to Barrows. I've been a little hesitant based on reading the case that was recently posted by the woman whose son had surgery had Barrows. I assume that it depends on the neurosurgeon you see there. I know based on your experience, you highly recommend Dr. Spaetzler as an expert on these cysts. I guess what I'm asking is do you still recommend the Barrows Institute but that to make sure to contact Dr. Spaetzler specifically instead of working with someone else there. I'm getting to the point where I'm thinking of having my cyst taken out even though according to 4 different MRI's from 4 different facilities the size is minimally different. The one surgeon here at Columbia Presbyterian who I would feel very confident in operating on me said that he really doesn't think my cyst is causing my symptoms since the cyst hasn't changed and my symptoms are new meaning I should have had the same symptoms all along. He would do a full fenestration where the cyst wouldn't fill up again. Another surgeon at Cornell here in NYC seems to feel that is is possible that my facial and eye pressure symptoms on the same side of my face where the cyst is could be the cause. His surgery is less invasive it is along the lines of a fenestration but there is a slight chance that the cyst could fill up. He's had a few cases that did. He operates on about 100 of them a year. So right now, I'm deciding what to do. The docs say just wait and see but in the meantime I have a hard time functioning and I've been more fatigued and I feel like I'm just going through the motions of life living in a cloud like state. My face seems to be getting worse slowly over the last couple months. Any advice would be greatly appreciated. By the way, for all us sufferers, there was a segment today on The Doctors Show. My dad told me about it but apparently my dad looked up the doctor that did the surgeries on the two guests on the show and he has lawsuits pending against him. A good lesson to really check out and get referrals on the surgeon especially if a person is considering surgery. God bless to all and I'll keep you in my prayers.

Debbie

August 9, 2010 - 12:52pm

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