Thank you, Maria, for the kind thoughts. Well we just came back from meeting with the neurosurgeon and she is not concerned about this possible csf leak. Because of other doctors there that are not in agreement with her about other issues, she started to go down a route of using a wire in the brain to measure pressure, tho she is not for this at this time. We assured her we don't want to do that and are with her in waiting to see how things go - our concern has been and still is that we are not getting any help for him to get thru life now. She ordered speech and occupational therapy -finally- we didn't know she was able to do this and told us before we had to see neuropsych first (who didn't help us at all past testing). So I am thanking God she isn't concerned this is a csf leak. Have others that had craniotomies and fenestration had a rough time after? How long? Thanks!
Comment Reply
Thank you, Maria, for the kind thoughts. Well we just came back from meeting with the neurosurgeon and she is not concerned about this possible csf leak. Because of other doctors there that are not in agreement with her about other issues, she started to go down a route of using a wire in the brain to measure pressure, tho she is not for this at this time. We assured her we don't want to do that and are with her in waiting to see how things go - our concern has been and still is that we are not getting any help for him to get thru life now. She ordered speech and occupational therapy -finally- we didn't know she was able to do this and told us before we had to see neuropsych first (who didn't help us at all past testing). So I am thanking God she isn't concerned this is a csf leak. Have others that had craniotomies and fenestration had a rough time after? How long? Thanks!
August 12, 2010 - 4:05pmThis Comment
Reply