I am hoping that one of you may be able to give me some direction. I finally got a written report from the last neurosurgeon at Cornell in NYC. His impression is that I am suffering from posterior fossa arachnoid cyst and that the differential diagnosis includes cervicalgia (a fancy term for neck pain). He never explained why my symptoms have changed yet on the last 4 MRI scans the cyst is pretty much the same size. I continue to have intermittent left facial tightening and some intermittent left eye pressure. The MRI's show pressure on the 7th cranial facial nerve. Not sure if that would affect my eye. I'm so confused as what to do next. Close friends who have had other bizarre health problems are suggesting the Mayo Clinic so that at least I get a team approach. I also sometimes feel like I'm walking around in a fog at times and I'm more fatigued. The weird thing is that I felt perfectly fine a year ago and again I come back to that the cyst didn't grow. One friend suggested possibly occipital neuralgia but I'm not even sure. I'm still waiting for my neurologist to get back to me. I may even contact Mayo myself. Can these cysts stay about the same size yet patients develop new symptoms? Any guidance would be greatly appreciated. I'm still deciding whether to send my stuff to Barrows and even thinking of looking into John Hopkins since I live on the East Coast. By the way, my cyst is about 2cm.
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Hi Maria and Pat,
I am hoping that one of you may be able to give me some direction. I finally got a written report from the last neurosurgeon at Cornell in NYC. His impression is that I am suffering from posterior fossa arachnoid cyst and that the differential diagnosis includes cervicalgia (a fancy term for neck pain). He never explained why my symptoms have changed yet on the last 4 MRI scans the cyst is pretty much the same size. I continue to have intermittent left facial tightening and some intermittent left eye pressure. The MRI's show pressure on the 7th cranial facial nerve. Not sure if that would affect my eye. I'm so confused as what to do next. Close friends who have had other bizarre health problems are suggesting the Mayo Clinic so that at least I get a team approach. I also sometimes feel like I'm walking around in a fog at times and I'm more fatigued. The weird thing is that I felt perfectly fine a year ago and again I come back to that the cyst didn't grow. One friend suggested possibly occipital neuralgia but I'm not even sure. I'm still waiting for my neurologist to get back to me. I may even contact Mayo myself. Can these cysts stay about the same size yet patients develop new symptoms? Any guidance would be greatly appreciated. I'm still deciding whether to send my stuff to Barrows and even thinking of looking into John Hopkins since I live on the East Coast. By the way, my cyst is about 2cm.
My best to all of you,
Debbie
August 13, 2010 - 2:12pmThis Comment
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