Dear Debbie, Hopefully someone else will have more to tell you, but since my son's cyst was discovered I have done much research along with my nurse-in-training daughter and spoken with neurosurgeons and neurologists about these. The docs have finally said that when it comes to these cysts, they really don't know all that much. Each case seems to be very individualized. Also told that study of brain and brain med is fairly new compared to other areas and cysts and tumors are not clear cut when it comes to answers. Am finding that our experience tho after surgery is fairly common in that neurosurgeons first say symptoms that show up after surgery will resolve in 1 -2 weeks, recovery 2 months and then as you hit anniversary dates they start to move the date till they say 2 years recovery. Those recovering from brain surgery pretty much agree on 12-18 month recovery to get back to normal. Yet some recover sooner, some later - some full recovery. some suffering for years. Since ac have been found in family clusters, they have recommened mri for my husband as he has had severe headaches for years. However, he isn't sure he even wants to find out, since after watching my son's recovery, it is definitely not clear cut whether to get surgery or not. Since my son's surgery resulted from the cyst bursting, there wasn't a choice. His first neurosurgeon was saying to wait on surgery even tho the cyst filled the entire left side of his skull. Other medical personel were saying it was an emergency to get surgery right then as permanent damage could be done because of size- we were calling daily trying to get appt moved up from 2 weeks as son was in pain. Emergency surgery was done because of intercranial pressure from cyst bursting.
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Dear Debbie, Hopefully someone else will have more to tell you, but since my son's cyst was discovered I have done much research along with my nurse-in-training daughter and spoken with neurosurgeons and neurologists about these. The docs have finally said that when it comes to these cysts, they really don't know all that much. Each case seems to be very individualized. Also told that study of brain and brain med is fairly new compared to other areas and cysts and tumors are not clear cut when it comes to answers. Am finding that our experience tho after surgery is fairly common in that neurosurgeons first say symptoms that show up after surgery will resolve in 1 -2 weeks, recovery 2 months and then as you hit anniversary dates they start to move the date till they say 2 years recovery. Those recovering from brain surgery pretty much agree on 12-18 month recovery to get back to normal. Yet some recover sooner, some later - some full recovery. some suffering for years. Since ac have been found in family clusters, they have recommened mri for my husband as he has had severe headaches for years. However, he isn't sure he even wants to find out, since after watching my son's recovery, it is definitely not clear cut whether to get surgery or not. Since my son's surgery resulted from the cyst bursting, there wasn't a choice. His first neurosurgeon was saying to wait on surgery even tho the cyst filled the entire left side of his skull. Other medical personel were saying it was an emergency to get surgery right then as permanent damage could be done because of size- we were calling daily trying to get appt moved up from 2 weeks as son was in pain. Emergency surgery was done because of intercranial pressure from cyst bursting.
August 13, 2010 - 2:54pmThis Comment
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