I have ankylosing spondylitis. I was diagnosed when I was 50 but had been ill for quite awhile before I was diagnosed. I am now 58 and my disease has progressed to the point where I had to go on disability. Its rough and I understand how frustrating it can be to get the help you need. Utilize the support group as they will understand what you are going through. Sometimes it takes awhile to get diagnosed as with all autimmune diseases. The support group will help you so much. I hope you followup and get involved.