I was just diagnosed in April with full blown Narcolepsy and it was a relief. I can tell when I'm going to have an attack - for the most part its a sensation in the back of my neck, almost like a warm tingling and trickling of fluid. On occasion if I'm at church or watching a movie that's boring, I'll notice that I'm yawning non stop - in that case I have to get up and walk around or go outside and change my surrounding. I have to tell my family "I'm going down" so they know it's time to leave. The cataplexy, I remeber the first time. It was 8 yrs ago and it has gotten worse and worse to the point that I can no longer hide it. I've dropped on the ground when being chased by my children. It's like your body shuts things down without letting you know.
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I was just diagnosed in April with full blown Narcolepsy and it was a relief. I can tell when I'm going to have an attack - for the most part its a sensation in the back of my neck, almost like a warm tingling and trickling of fluid. On occasion if I'm at church or watching a movie that's boring, I'll notice that I'm yawning non stop - in that case I have to get up and walk around or go outside and change my surrounding. I have to tell my family "I'm going down" so they know it's time to leave. The cataplexy, I remeber the first time. It was 8 yrs ago and it has gotten worse and worse to the point that I can no longer hide it. I've dropped on the ground when being chased by my children. It's like your body shuts things down without letting you know.
October 23, 2010 - 9:04pmThis Comment
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